骨髓移植病患對居家照顧之認知、需求、滿意度與情緒反應探討

Cognition, Needs, Satisfaction, and Emotional Responses for Home Care in Bone Marrow Transplantation Patients

許麗珠(Li-Chu Sheu) ； 陳耀昌(Tao-Chang Chen) ； 黃秀梨(Shiow-Li Hwang)

《The Kaohsiung Journal of Medical Sciences》 13卷12期 (1997/12) Pp. 738-747

https://doi.org/10.6452/KJMS.199712.0738

摘要

骨髓移植治療為病患點燃希望也帶來威脅與傷害；居家期間更面臨許多自我照顧與身心調適的問題。有關骨髓移植的研究，到目前為止大多著重移植技術的改進、合併症的處理、身心的影響、生活品質…等，國外有關骨髓移植病患在居家照顧的認知、需求、滿意度方面的研究相當少見，國內的文獻探討更是缺乏。本研究目的在探討骨髓移植病患對居家照顧的認知、需求、滿意度與情緒反應；研究採描述性調查法，收集某一級醫學中心接受骨髓移植出院之40位個案；以居家照顧認知、需求、滿意度與焦應、憂鬱情緒量表進行資料收集。研究結果發現，病患對居家照顧的認知整體偏低，對疾病的調適與居家照顧，呈現出高度需求與低度滿意之現況，病人也感受到相當強度的焦應與憂鬱情緒。職業、教育與社經地位影響病患的認知；宗教信仰影響個人居家照顧的需求與滿意度；性別與社經地位則影響病患居家照顧時的情緒感受。本研究結果，有助於了解骨髓移植病患對居家照顧的認知與需求，以提供出院衛教之參考，進而延展骨髓移植病患持續性醫療照顧之觸角。

並列摘要

Bone marrow transplantation (BMT) is an aggressive treatment which can induce considerable physical and psychological stresses. Patients face various problems in self care and psychological adjustment after discharge from the hospital. The purpose of this study was to explore the cognition, needs, satisfaction, and emotional responses toward home care in BMT patients and the factors influencing them. Forth BMT patients were enrolled from the outpatient clinic of BMT in a medical center. A descriptive research design was adopted. Cognition, needs, satisfaction, anxiety and depression for home care in these patients were collected by question-aires.
The results showed that BMT patients had inadequate knowledge about how to care for themselves at home. High need and low satisfaction on disease adjustment and home care were found in these patients. All patients experienced anxiety and depression. Occupation, education, and socioeconomic status were found to affect patient’s cognition. Religious belief influenced needs and satisfaction for home care in these patients. Sex and social-economic status emotional reaction of patients. This study will help health personnel understand the cognition, needs and satisfaction for home care in BMT patients. It can be used as a reference for organizing discharge plan and extending the continuity of care for BMT patients.

並列關鍵字

bone marrow transplantation ； cognition ； needs