癌症兒童主要照顧者所關注的居家健康照護需求

Caregiver's Concern: Home Health Care Needs of Children with Cancer

李雅玲(Ya-Ling Lee) ； 高碧霞(Bih-Shya Gau) ； 曾紀瑩(Chi-Ying Tseng) ； 駱麗華(Li-Hua Lo)

《護理研究》 8卷6期 (2000/12) Pp. 673-684

https://doi.org/10.7081/NR.200012.0673

摘要

本研究目的在瞭解癌症兒童的主要照顧者對居家健康照護的需求。以結構式問卷調查法，訪談來自北區多所醫學中心及區域醫院的病童主要照顧者，共得146份有效問卷。有效率88.5%。研究結果顯示：(1)病童的平均年齡爲10歲，男生佔多數；主要照顧者以母親佔最多數，其次爲父母共同。(2)診斷以白血病最多，患病時間平均爲4.7年。(3)主要照顧者對居家健康照護的認知與期望多數是「部份了解」(43.3%)；認爲「目前需家訪」的佔多數(77.8%)；另一方面，若需家訪希望由「兒童癌症顧問護理師」來訪視的最多(47.3%)，其次是居家照護護士(30.1%)。訪視時間以選擇「在每一次做完化療後」者爲最多(72.3%)。除了護理人員外，受訪者最希望「社工師」來家訪(32.2%)，其次是「營養師」(30.8%)，「學校老師和醫師」分別爲19.9%和19.2%。一半以上的受訪者會介意居家照護費用對家庭經濟造成負擔。(4)居家健康照護需求的項目方面，前十項依序爲「陪孩子做心理輔導」、「意外傷害的預防及處理」、「飲食評估」、「提供照顧者情緒諮商（支持）」、「膳食指導」、「居家教學」、「靜脈注射藥物」、「黏膜破皮處理」、「發燒處理」、「疼痛處理」。比起成人慢性病患居家照護，癌症兒童的居家健康照護需求有其獨特性。本研究結果可做爲提供癌症病童居家健康照護服務內容很好的參攷依據。

關鍵字

居家健康照護 ； 兒童 ； 癌症 ； 照顧者 ； 需求

並列摘要

The purpose of this study was to understand the home health care needs of children with cancer from the point of view of the caregivers. 146 caregivers were interviewed using a structured questionnaire from northern Taiwan medical centers and district hospitals. The results showed that: (1)The average age of children with cancer was 10 years old, most were male. (2)The average duration of disease was 4.7 years, most frequent diagnosis among them was leukemia. (3)The knowledge and expectations of most caregivers were very limited, and most of them wanted to know more about home health care for children. Consultant nurses were the ones most caregivers expected to do home visits. In addition to these nurses, social workers, dieticians, teachers, physicians, in this order, were also expected to visit. Over half of the interviewees admitted that the fees for home health care would be a burden. (4)Ten items of home health care needs for cancer children were “mental consultation for children”, “prevention and management of accidents”, “diet assessment”, “emotional support for caregivers”, “dietetic guidance”, “home teaching”, “intravenous injection”, “management of breakdown of mucous membrane”, “management of fever”, and “pain management”.

並列關鍵字

home health care ； children ； cancer ； caregiver ； need

參考文獻

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