陪你走到最後──家庭照顧的困境與突破

目前台灣約有73萬長照需求人口，其中約6成失能、失智者的照顧責任由家庭照顧者獨自承擔。隨著超高齡社會即將來臨，越來越多家庭可能在未來面對長期照顧的困境。雖然這個問題近年來獲得各界的關注，媒體報導卻往往聚焦在悲劇事件上，缺乏對背後歷程的理解，也忽略其他照顧者正透過正式、非正式資源和自我培力的過程，走出不一樣的道路。家庭照顧者需要的從來不是同情，而是同理。本篇深度報導透過訪談五名家庭照顧者，紀錄他們成為照顧者，面對生活改變和困境自我成長的心路歷程。並進一步採訪產官學三方延伸探討照顧支持性資源的限制和突破，試著同時找出未來可能的個人或結構面解方。雖然家庭照顧的困境很難完全被解決，卻可以透過不同層面的突破，例如社區互助、職場支援、賦予照顧者自主權的長照政策…等，讓照顧者們明白他們並不孤單，他們也被照顧。

關鍵字

家庭照顧；長照；在地老化；自我實現；超高齡社會

並列摘要

At present, there are about 730,000 long-term care needs in Taiwan, 60% of them are taken care solely by home caregivers. With the advent of a super-aged society, the plight of long-term care will probably happen in every family in the future. Although this issue has received a lot of attention, media reports tend to focus only on tragic events, lack of understanding of the history behind them and neglect that other caregivers are going through a different path, through formal, informal resources and self-practice. What Family caregivers need is empathy not sympathy. This in-depth report interviews five family caregivers to record their self-growth journey as a caregiver facing life changes and dilemmas. Furthermore, by interviewing long-term care facilities, officials, and academics to discuss the limitations and breakthroughs of the care supportive resources. Try to find out possible personal and structural solutions in the future. Although the dilemma of family care is difficult to solve completely, through different levels of breakthroughs, caregivers can feel cared by others, not alone anymore, such as community mutual assistance, workplace support, and long-term policies that give caregivers autonomy to choose.