我的丈夫是精神分裂： 我的丈夫是精神分裂： 女性配偶照顧行動之現象探究

The Family-Based Caring Action of Taiwanese Wives Whose Husbands Were Diagnosed as Schizophrenia

李佩玲(Pei-Ling Li)

指導教授 ： 許敏桃

高雄醫學大學/護理學院/護理學系研究所/碩士(2009年)

https://doi.org/10.6832/KMU.2009.00022

摘要

華人婦女面對精神分裂的丈夫對家庭所帶來的衝擊，她們如何讓家庭被迫重組的結構成為丈夫的重要支持力量，是本研究所欲瞭解的真實面向。本研究採現象學研究法，對七位丈夫罹患精神分裂症的華人女性進行深度訪談，試圖以質化的觀點，呈現精神分裂症病患之女性配偶生活世界背後的經驗本質與意涵，目的包括：(1)精神分裂病患之女性配偶常民觀點的生活世界；(2)精神分裂病患之女性配偶生活世界的裂解與療癒。本研究結果呈現兩大主軸：
一、 疾病意義：精神分裂症病患的女性配偶接受醫療對丈夫的疾病診斷，但是仍努力從丈夫的原生家庭的成員互動、民俗文化的宗教觀點、自身與丈夫生活的經驗中尋求疾病歸因。她們所內化的疾病意義是比較而來的，她們由成長過程中對精神疾病的觀感，參酌他人的症狀表現，找出丈夫的「正常」與他人的「不正常」差異處，融合對丈夫疾病症狀的詮釋，形成她們所理解並接受的精神疾病意義與圖像。
二、 家庭療癒的力量：華人女性大多無法擺脫傳統文化的角色壓力，所以她們只好選擇照顧生病的丈夫，維持家庭的運作。精神分裂症病患的女性配偶會教育丈夫與孩子互動、照顧孩子，她們企圖讓生病的丈夫回歸到家庭中父親角色的正常位子，讓孩子真正能感受到父親的存在價值，讓丈夫成為家庭中「正常」的父親。她們也教育孩子內化父親的疾病行為，希望孩子用包容、體諒的方式來對待父親。
精神分裂症病患的女性配偶適應丈夫的生病生活，在疾病意義方面顯見病人家屬所說的「正常/不正常」與醫療所謂「正常/不正常」是不同向度的。理解家屬這樣的差異，有助於醫療人員的社區照顧。但是接受不等於認命，適應不等於希望。所以，她們努力的維持家庭的運轉，讓重組的家庭更貼近於「正常」，使家庭成為病患最重要的支持力量，讓其他成員有家庭圓滿的感受。

關鍵字

精神分裂症 ； 女性配偶 ； 行動探究

並列摘要

This study aimed at exploring how Taiwanese women faced the impact of her schizophrenic husband had brought to family and how she reconstructed family to form an importance support for their husband. By adopting phenomenological method with in-depth interview and participant observation, 7 Taiwanese women whose husband had diagnosed schizophrenia were recruited to present the life world of the female spouses’ experience in a qualitative perspective. The purposes of this study are two folds: a). the essence and meaning of female spouses of schizophrenia patients, and b). the healing web formed by female spouses for her schizophrenic husband. The result of this study presented two main findings as follows.

I. The meaning of dis-order:
The female spouses of schizophrenia patients accepted the medical diagnosis of their husband, but they still tried hard to find another attribution of the disorder from the interaction with their husband’s family members, the religion of folk culture and their own life experience with their husband. The internalized meaning of disorder was derived from comparison. Specifically, they developed an perception of mental disorders in the adaptation process and referred to other patients’ disorder behaviors, and then found the difference between the “normality” of their husband’s and the “abnormality” of other people. Finally, they integrated the founding and their interpretation of the disorder symptoms, forming the meaning and image of the mental disorder from what they understood and accepted.

II. The healing power of family:
Most of the Taiwanese women could not get rid of
the pressure from their role in the traditional culture. Therefore, they could only choose to take care of their husband with disorder and maintain the function of family. The female spouse of schizophrenia patients would teach husband to interact with children and take care of children, in order to make their husband get back to their paternal role in the family and become a “normal” father, as well as let children feel their father’s existence was valuable. Moreover, they taught children to internalize the illness behavior and treat them in the way of acceptance and consideration.

These female spouses of schizophrenia patients had eventually adapted to their husbands’ disorder. However, in the meaning of disease, it was shown that there were different perspectives of “normality and abnormality” between the patients’ families and medical system. Therefore, to understand the differences would be helpful to the community care of medical professionals. Moreover, they didn’t surrender to their fate and still kept their hope to strive for maintaining the function of the family and made the structure of reconstructed family closer to a “normal” family. Meanwhile, they made family become the most important support to the patients and also let other family members feel that they had a complete family.

並列關鍵字

Taiwanese Wives ； Schizophrenia ； Caring Action

參考文獻

中文文獻

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王俊凱、周元華（2005）．精神分裂症．臨床醫學，55（2），

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