接受安寧住院療護期間主要照顧者生活品質的變化

The Change of Primary Caregivers' Quality of Life During the Hospice Program Care

李淑真(Shu-Chen Lee) ； 劉雪娥(Hsueh-Erh Liu) ； 蔡培葵(Pei-Kwei Tasy) ； 賴裕和(Yeur-Hur Lai)

《安寧療護雜誌》 8卷3期 (2003/08) Pp. 259-269

https://doi.org/10.6537/TJHPC.2003.8(3).2

摘要

許多研究發現癌症主要照顧者常出現身心症狀且覺生活品質變差的情形。其中接受安寧癌末之照顧者這些負面的經驗就顯得更嚴重。然而這些癌末照顧者之研究多不在「安寧療護」之情境當中，且多採用橫斷式研究設計來收集資料。本研究想探討在接受「安寧療護」期間，主要照顧者生活品質的變化為何？本研究以北台灣某安寧病房為場所，共立意取樣22位個案，採縱貫式相關性研究設計，分別於病患住院後24小時內（Time 1）與住院後第10天（Time 2）收集訪談資料。所有參與者自行完成「人口學相關資料」，「照護相關資料」，與「生活品質量表」，而研究者根據病歷與自行評估完成「癌末病患人口學資料」、「癌末病患疾病特質資料」與「癌末病患身體活動功能」等三項資料。以SPSS 8.0為資料分析之工具，無母數分析結果發現主要照顧者自身的整體生活品質隨著時間無顯著變化，但其自覺病患的生活品質有顯著增加。此一結果顯示「安寧療護」可維持癌末照顧者的生活品質外，更可增進癌末病患的生活品質。

關鍵字

安寧療護 ； 主要照顧者 ； 生活品質

並列摘要

Previous studies have shown that primary caregiver have psychosomatic symptoms and poor quality of life. All the studies used cross-sectional design and were not conducted in hospice setting where patients were in worse conditions. The purpose of this study is to explore the patterns of changes of quality of life for family caregivers while they join the hospice program. A convenience sample of twenty-two caregivers of cancer patients was recruited from a hospice in the northern part of Taiwan. Based on longitudinal correlation design, the interviews scheduled as within 24 hours of admission (Time 1), 10th day (Time 2). All subjects were asked to complete questionnaires related to the demographic and caregiving variables. In addition, they had to complete the Quality of Life Index (QLI) during each interview. At the same time, researcher completed patients-related variables such as: demographic package. Nonparametric Tests is the main techniques to define the subjects QOL.
The results found that caregivers’ quality of life remained stable and increased patients’ QOL during study period.

並列關鍵字

hospice ； primary caregiver ； quality of live