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從社會支持觀點探討愛滋線上匿名諮詢問答

Exploring Anonymous Online AIDS Q&A Services: A Social Support Perspective

摘要


隨著醫療技術進步,愛滋病逐漸慢性病化,感染者所關心的議題逐漸轉為權益相關;但因疾病之特殊性,大部分感染者注重其隱私,因而大多使用網際網路取得資訊。本研究以露德協會線上匿名留言板為研究對象,希望瞭解現今國內愛滋病相關網站所提供的愛滋病相關資訊是否滿足愛滋病友需求,並透過社會支持觀點分析愛滋匿名留言板之留言與回覆,探討留言板中的需求與提供之資訊是否相符;希冀能協助社會支持提供者瞭解目前感染者主要需求資訊。

並列摘要


Due to medical advancement and innovation, AIDS is gradually becoming a chronic disease. The infected people are now more concerned about the patient rights. Nonetheless, because AIDS is in some ways a unique disease due to its being concerned with the most intimate and private part of a patient’s life, those with AIDS prefer to search for information online because this affords them privacy and confidentiality. Therefore, this study aims to explore an anonymous online AIDS question and answer (Q&A) service from the social support perspective. The purpose of this study is to find out whether the AIDS information provided by the website’s Q&A service in Taiwan satisfy the needs of the patients and to discover whether the needs of patients match the information provided from the comments on websites. This study provides insights into and understanding of the information needs of patients with HIV infection or AIDS from the perspective of social support.

參考文獻


張麗玉、黃源協、陳快樂(2009)。團體處遇對愛滋患者的憂鬱與社會支持影響之研究。臺灣健康照顧研究學刊,6,55、57-77。
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Brownell, A., & Shumaker, S. A. (1984). Toward a theory of social support: Closing conceptual gaps. Journal of Social Issues, 40(4), 11-36.
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被引用紀錄


陳麗玉、陳怡靜(2022)。難孕婦女社群成員的知識分享與健康促進行為之關聯性研究圖書資訊學研究16(2),71-107。https://doi.org/10.30177/JLISR.202206_16(2).0003

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