生育先天性缺陷兒對家庭的影響

The Impact of Newborns with Congenital Defects on Family

黃璉華(Lian-Hua Huang)

《中華公共衛生雜誌》 14卷4期 (1995/08) Pp. 299-313

https://doi.org/10.6288/CJPH1995-14-04-01

摘要

本研究探討生育先天性缺陷兒對家庭的影響。研究對象為衛生署登記的八十年度生育光天性缺陷兒家庭，以郵寄問卷及電話訪問的方式收集資料，以SPSS電腦軟體和內容分析法分析資料，共有51個家庭參與本研究。
研究結果發現先天性缺陷兒對母親的影響是多方面的，缺陷特性的嚴重度、配偶及其他有意義家人的態度、醫護人員的態度會影響母親對缺陷兒的感受及態度。所以護理人員在照護生育先天性缺陷兒母親時，應慎加注意本身的官行態度，同時須瞭解其他有意義家人的態度與需要，才能幫助母親調適因生育先天性缺陷兒帶來的壓力與影響，進而協助整個家庭的適應過程。研究結果顯示生育先天性缺陷兒對父親亦同樣造成影響，但對母親的影響大於對父親的影響。
其它家人，包括手足及（外）祖父母，也不可避免的有哀傷及情緒反應。因生育光天性缺陷兒會對整個家庭帶來影響，建議衛生機構、社會福利及教育當局提供適切的服務。

關鍵字

先天性缺陷 ； 衝擊 ； 家庭

並列摘要

The purpose of this study was to investigate the impact of the birth of a child with a congenital defect on the family. The target population were mothers who gave birth to a child with a congenital defect in 1991. Data were collected by mailed questionnaires and telephone interviews and were analyzed by using Author Write out full name computer software and content analysis. A total of 51 families participated in this study.
The study results revealed that the impact of having an imperfect child on a mother was multidimensional: the characteristics of the congenital defect, the attitudes of the spouse and other family members, health profcssionals' attitudes, and the mother's attitudes and feelings were found to be correlated. Clinical implications are that health professionals are obligated to help the child's mother and family cope with the periodic adjustment stress. Gender differences were found between mothers' and fathers' responses to having a child with a cougenital defect.
As for other family members, such as siblings and grand parents, unavoidable grief and emotional reaction were noted. The impact of a child with birth defects on the whole family is obvious. It is recommended that comprehensive health, welfare and educational serrices be provided.

並列關鍵字

congenital defects ； impact ； family