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照顧一位胎兒囊狀水瘤病嬰及其父母之護理經驗

The Nursing Experience of a Fetal Cystic Hygroma Infant with His Parents

摘要


胎兒囊狀水瘤是一種淋巴組織的先天性疾病,雖無致命性但若壓迫氣管會造成呼吸道阻塞則需要手術。本文護理期間為2010年12月13日至2011年1月27日,筆者利用觀察與會談並以主護護理師的角色,以Gordon十一項功能性健康型態,評估個案及其家庭所面臨的主要護理健康問題,結果有:呼吸道清除功能失效、營養改變/少於身體所需、照顧者角色緊張、照顧者知識缺失。護理過程中運用Watson理論十項人性關懷照顧理念,協助評估個案與家屬的問題與需求,與其建立良好護病關係,解決個案術後身體問題、減輕父母之緊張、增加父母了解個案每日病情變化與照顧個案知識技巧,提高出院後對個案居家氣切照顧的信心與能力。欲由此護理經驗,增加新生兒加護病房護理人員照顧此類病嬰與父母之參考。

並列摘要


This article presents the post-operative care of a 2-month old infant in an intensive care unit (ICU) after resection of a fetal cystic hygroma. Fetal cystic hygroma is a congenital malformed lymphoid tissue that is not life-threatening by itself; however, it may compress the trachea causing airway obstruction. The baby had a tracheostomy and stayed in the ICU for 46 days; therefore, care extended to the parents. Four nursing problems were identified through direct care, interview and observation, and Gordon 11 functional health patterns assessment, (1) ineffective airway clearance, (2) nutritional less than body needs, (3) parents' role strain, and (4) caregiver knowledge deficit. Based on Watson's caring theory, the health problems assessed included both the patient and his parents. The establishment of a positive caring relationship and improvement of the patient's post-surgery condition helped to reduce parental stress. Parents were able to demonstrate confidence and competency in providing care for their baby with a tracheostomy at home.

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