區塊鏈技術應用於健康資料治理之效益、困境與挑戰

Benefits, Dilemmas and Challenges in the Application of Blockchain in Health Data Governance

李沛錞(Pei-Chun Lee) ； 林姿妤(Tzu-Yu Lin)

《圖書資訊學研究》 18卷1期 (2023/12) Pp. 129-174

https://doi.org/10.30177/JLISR.202312_18(1).0004

摘要

本研究旨於探討區塊鏈技術應用於健康資料治理之效益、困境與挑戰，以生態系統觀點、立基於資料生態系統理論，針對國內產業與國外標竿組織進行個案分析，輔以專家深度訪談，分別由科技構面與治理構面深入探討區塊鏈技術應用於健康資料治理在組織與產業層級所產生之影響。本研究發現，區塊鏈技術的導入應建立於現有技術之上，同時考量患者、醫療服務提供者、醫療科技公司、研究機構與政府等利害關係人對於健康資料與醫療服務的需求。並且基於嚴謹的資料治理架構進行系統開發，以降低資料維護及勘誤成本，進而提升資料品質，方能有效帶動醫療區塊鏈生態系統之發展。

關鍵字

區塊鏈技術 ； 資料治理 ； 生態系統觀點 ； 健康資料治理

並列摘要

This study aims to: (1) Explore the benefits, dilemmas and challenges of applying blockchain technology to health data governance; (2) Explore the actual impacts of applying blockchain technology to health data governance. This study applies the perspectives of organizational governance as well as technology to achieve the research objectives. Case studies and in-depth interviews were conducted to grasp the possible changes and formulate strategies early. The results of the study indicate that different levels of organizations apply blockchain technology to health data governance, which generate different benefits, they will also face dilemmas and challenges accordingly. Furthermore, the implementation of blockchain technology can make breakthroughs in health data governance and technology management of the global medical industry, and drive the expansion of medical blockchain ecosystem. It also offers numerous opportunities for usage in the healthcare sector, e.g., in public health management, user-oriented medical research based on personal patient data as well as drug counterfeiting. These advances also pose significant data governance challenges for ensuring value for individual, organizational, and societal stakeholders as well as individual privacy and autonomy.

並列關鍵字

Blockchain Technology ； Data Governance ； Ecosystem Perspective ； Electronic Health Record

參考文獻

Abraham, R., Schneider, J., & Brocke, J. V. (2019). Data governance: A conceptual framework, structured review, and research agenda. International Journal of Information Management, 49, 424-438. doi:10.1016/j.ijinfomgt.2019.07.008

Abu-elezz, I., Hassan, A., Nazeemudeen, A., Househ, M., & Abd-alrazaq, A. (2020). The benefits and threats of blockchain technology in healthcare: A scoping review. International Journal of Medical Informatics, 142, 104246. doi:10.1016/j.ijmedinf.2020.104246

Ahmed, S. R., Amer, M. M., & Killawi, A. (2017). The ecosystems perspective in social work: Implications for culturally competent practice with American Muslims. Journal of Religion & Spirituality in Social Work: Social Thought, 36(1-2), 48-72. doi:10.1080/15426432.2017.1311245

Ahram, T., Sargolzaei, A., Sargolzaei, S., Daniels, J., & Amaba, B. (2017, June). Blockchain technology innovations. Paper presented at the 2017 IEEE Technology & Engineering Management Conference (TEMSCON), Santa Clara, CA. doi:10.1109/TEMSCON.2017.7998367

Alhassan, I., Sammon, D., & Daly, M. (2016). Data governance activities: An analysis of the literature. Journal of Decision Systems, 25(Suppl. 1), 64-75. doi:10.1080/12460125.2016.1187397