普拉德—威利氏症候群病嬰護理照顧—病例報告

Nursing Experience for a Prader-Willi Syndrome Baby-Case Report

林嘉慧(Chia-Hui Lin) ； 董道興(Tao-Hsin Tung) ； 師慧娟(Hui-Chuan Shih)

《南臺灣醫學雜誌》 2卷1期 (2006/12) Pp. 30-36

https://doi.org/10.6726/MJST.200612_2(1).0007

摘要

本文主要敘述一位普拉德—威利氏症候群病嬰的護理經驗，護理過程包含協助父母調適，故病嬰父母也是護理對象。藉由評估病嬰的外觀、肌肉張力與動作型態等生理部份，以及與父母會談收集資料，確立的問題有：低效性嬰兒哺餵型態、成長及發育改變、潛在危險性親職功能改變。在護理期間，除了提供醫療照護與社會資源，並協助父母學習照顧普拉德—威利氏症候的寶寶以提升其信心，藉由增加親子間的互動，促進良好的親子依附關係。除此，依個案的需求訂定完整的出院計畫，為病嬰回歸家庭作準備，達到以家庭為中心的護理。

關鍵字

護理經驗 ； 普拉德—威利氏症候群 ； 親子依附關係

並列摘要

This case report narrates the nursing experience of an infant diagnosed of Prader-Willi Syndrome. The nursing process includes helping the parents to adjust appropriately, so the affected infant's parents are also the author's objective of nursing. The author collected information by assessing the infant's physiological characteristics, such as appearance, muscle tension, movement conditions, etc. of the infant, and also by interview with the parents. The problems thus established were: poor efficiency of feeding the infant, growth and developmental changes, latent of changes of the parents' functions. During the nursing period, in addition to providing medical treatment and social resources, and to help the parents improving their confidence in caring their child with Prader-Willi Syndrome, the author helped to promote better parent-offspring attachment by increasing the interaction between the parents and their child. Furthermore, formulating complete discharge plan for preparation of the infant patient to return home may achieve the goal of nursing with the family at the center.

並列關鍵字

nursing experience ； Prader-Willi Syndrome ； parent-infant attachment