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【論文摘要】動故事團體介入對於肢體障礙兒童家庭生活品質之影響:質性研究分析

【論文摘要】Group Intervention of Action with Story on Quality of Life in Families with Children with Physical Disabilities: Qualitative Research

摘要


目的:動故事團體介入融合繪本的故事情境以及團體動作遊戲模式,同時提供孩童在各發展面向的刺激,並增進孩童的社會互動、學習與他人合作。然而,過去並無研究針對肢體障礙兒童族群探討介入效益對於家庭生活品質之影響,因此本研究採用質性研究之方式進行家長訪談,以了解此介入模式是否造成生活品質之改善。方法:本研究共有四組家庭參加,包含4位4-6歲之肢體障礙兒童,參與為期8周之介入,除了利用標準化評估工具進行各發展面向之前測與後測評估(初步成果先前已發表),另邀請主要照顧者﹙三位媽媽與一位爸爸﹚於後測時接受一對一半結構式訪談。訪談結果之逐字稿以Nvivo軟體進行分析,由通訊作者進行初步檢視後,偕同第二作者進行編碼。結果與結論:此介入模式可帶來三方面之成效:情境主題、主效益以及附加價值。多數家長認為情境主題為本介入最大的特點,可增加小朋友參與的動機。主效益部分,受訪者均認為此介入模式可協助兒童融入團體、改善適應能力、且變得更樂觀;過程中,可同時提供家長喘息的機會。衍生的附加價值則包括可有效提升手足互動,且未來可發展為商業化之介入模式。整體而言,動故事團體介入可對肢體障礙兒童與其家庭產生正面影響,提升整體生活品質。

並列摘要


Introduction: The group intervention of action with story (AWS), which involves the integration of the stories of picture books and group motor games, facilitate the development in various aspects in children. This intervention would also enhance children's social interaction and learning to cooperate with their peers. However, there is a lack of research that has investigated the effect of AWS group intervention on quality of life in families with children with physical disabilities. Therefore, this study conducted qualitative research to interview with parents to understand whether the AWS group intervention would result in the improvement in their quality of life. Methods: Four caregiver-child dyads participated in an eight-week AWS group intervention, including four children with physical disabilities who aged between four and six years old. Several standardized assessment tools were used to conduct pre- and post-intervention assessment in different developmental domains (preliminary results has been previously presented), the main caregivers (three mothers and one father) were invited to join one-to-one, semi-structured interview. The transcript of the interview was analyzed using the Nvivo software. The corresponding author (YCL) was responsible for the initial inspection of data patterns and collaborated with the second author (QWC) to complete the coding. Results & Conclusions: The main benefits of the AWS group intervention could be divided into three sections: story situational theme, main benefit, and additional value. Most parents believed that story situational theme was the main characteristics of this study as children's engagement in activities could be motivated by the stories of picture books. In terms of the main benefit, all interviewees stated that this intervention helped children adapt themselves into the groups at school, improve their adaptive behaviours, and become more optimistic. Additionally, it provided parents with respite care during the process. The derived additional value included the improvement in the sibling relationship and the potential business model of the AWS group intervention. Overall, the AWS group intervention could bring a positive impact on children with physical disabilities and their families as well as improves their quality of life.

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