A Follow-Up Study of Genetic Counseling in Down Syndrome

唐氏症遺傳諮詢之追蹤研究

林秀娟(Shio-Jean Lin) ； 黃美智(Mei-Chih Huang) ； 陳幸華(Sing-Hua Chen) ； 蔡佳蓉(Chia-Jung Tsai) ； 許世芬(Shu-Fen Shu)

《Acta Paediatrica Sinica》 36卷3期 (1995/06) Pp. 192-196

https://doi.org/10.7097/APS.199506.0192

摘要

To ascertain the effects of genetic counseling on the education of counselees, a questionnaire study on the acceptance of genetic knowledge was carried out among 126 parents of children with Down syndrome. Those parents from the “Down Syndrome Association” had best scores for knowledge, followed by those who had received counseling according to a designed format (programmed counseling) in this Hospital. Parental perceptions of the information needed in genetic counseling were also studied and it was found that most parents thought that the topics of education and medical care were more important than genetic information. Realization of such difference in primary concern between counselors and counselees may improve the effectiveness of genetic counseling.

關鍵字

唐氏症

並列摘要

To ascertain the effects of genetic counseling on the education of counselees, a questionnaire study on the acceptance of genetic knowledge was carried out among 126 parents of children with Down syndrome. Those parents from the “Down Syndrome Association” had best scores for knowledge, followed by those who had received counseling according to a designed format (programmed counseling) in this Hospital. Parental perceptions of the information needed in genetic counseling were also studied and it was found that most parents thought that the topics of education and medical care were more important than genetic information. Realization of such difference in primary concern between counselors and counselees may improve the effectiveness of genetic counseling.

並列關鍵字

Down syndrome ； genetic counseling ； programmed counseling