本文為探討一位19歲大學生初次發病診斷為皮肌炎及其父母之護理經驗。筆者於護理期間2010年5月28日至7月15日,以Gordon十一項功能性健康型態為評估工具,透過身體評估、會談、觀察及實際照護方式收集主、客觀資料,結果發現個案有吞嚥障礙、身體心像紊亂及照顧者角色緊張等護理問題,在護理過程中筆者以持續性主動關懷的態度與個案建立信任的護病關係,藉由傾聽、指導與同理心引導個案說出自己想法,透過醫療團隊與個案父母討論治療方針,提供相關醫療資訊及支持系統增加個案對疾病的認識,降低擔心與焦慮等情緒,希望藉由護理措施介入,預防併發症發生,並獲得良好的心理支持,以促進身、心、靈的舒適。
This case report discussed the nursing experience of a 19 year-old young female suffering from dermatomyositis for the very first time. The authors used Gordon 11 items of functional health condition to evaluate health status of the client from 5 May to 15 July 2010. The health problems were: impaired swallowing, disturbed body image, and caregiver role strain. The authors provided continuous and initiative caring attitude and built a trusting relationship with the client. The strategies of listening and empathy were applied to encourage the client to talk about her feelings. We discussed the goals of treatment with the clients' parents through interdisciplinary team conference in order to increase the awareness of the disease, and to decrease the extent of anxiety. We hope these interventions could help prevent contraindications of the disease and enable the client to receive more psychological support in order to reach the wellbeing of physiology, psychiatry and spirituality.