運用繪畫探討骨癌青少年治療過程之希望經驗

希望是人類普遍的生活現象，也是治療歷程的正向存有及強化生命意義的經驗，骨癌青少年除了面臨症狀困擾，治療期間也會出現焦慮、憂鬱等負面心理，希望可為青少年營造正面影響，創造更豐富的未來。本研究應用現象學研究法，透過骨癌青少年之繪圖及描述其希望經歷，以了解其手術治療期間的希望經驗本質。並依據Snyder提出的希望理論概念出發，以現象學意向性觀點，運用繪畫開啟青少年對其希望經驗的整體性描述。以立意取樣，於某醫學中心收案，納入條件為診斷骨癌並曾接受手術治療之青少年，共10位參與研究。採用Colaizzi的資料分析法進行歸納解析，以Lincoln和Guba（1985）所提準則考量研究的嚴謹度。研究共呈現四個主題：具意義的目標動力、發展因應策略、關懷的激勵、信仰與正向的動能。此結果可作為提供護理措施之參考，協助病童懷抱積極正向態度面對疾病與治療，順利穿越黑暗隧道。

關鍵字

骨癌；青少年；希望；繪畫；現象學

並列摘要

Adolescents with bone cancer often encounter symptoms of distress and negative moods, such as anxiety and depression. However, hope may have a positive effect on such adolescents and enhance their future prospects. Hope is not only a universal phenomenon in human life but also embodies the experience of a positive being and strengthens the meaning of life for adolescents undergoing treatment. This study investigated the essence of hope in adolescents with bone cancer during their treatment by using a phenomenological approach along with drawings and descriptions. First, the concept of hope, as proposed by Snyder, was considered, and the intentionality perspective of phenomenology and the drawing method were used to illustrate the adolescents' holistic descriptions of their hope experiences. Purpose sampling was employed to select participants from a medical center in Taiwan, and adolescents with a diagnosis of bone cancer and who were undergoing treatment were included in the study. A total of 10 adolescents were included. To analyze data collected from the participants, Colaizzi's analytical method was applied, and to ensure the rigor of the study, Lincoln and Guba's trustworthiness criteria were employed. The findings revealed four themes: motivation to set meaningful goals, development of coping strategies, the power of caring, and spiritual and positive energy. The study findings can help in the development of nursing interventions aimed at assisting adolescents with bone cancer during treatment. Through such nursing interventions, health-care professionals can contribute to the development of a positive attitude among adolescents with cancer and assist them in navigating the challenges of their treatment journey.

並列關鍵字

bone cancer ； adolescents ； hope ； drawings ； phenomenology

參考文獻

穆佩芬(2011)．意向性護理療癒於罹癌病童身體經驗的探問．榮總護理，28（2），156-163。

穆佩芬、尹亭雲、張家慧(2014)．兒童繪畫發展與臨床應用．榮總護理，31(4)，414-425。

Alexander, J. H., Binitie, O. T., Letson, G. D., & Joyce, D. M. (2021). Osteosarcoma: An evolving understanding of a complex disease. Journal of the American Academy of Orthopaedic Surgeons, 29(20), e993-e1004.

Barton, K. S., Tate, T. P., & Rosenberg, A. R. (2017). Lost in translation: Adolescents and young adults use words of hope to express their spirituality. Journal of Clinical Oncology, 35(31), 185-185.

Cho, E., & Docherty, S. L. (2020). Beyond resilience: A concept analysis of human flourishing in adolescents and young adults with cancer. Advances in Nursing Science, 43(2), 172-189.

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