腦性麻痺幼兒母親的日常職能活動與生活品質之探討

The Investigation of Daily Occupation and Quality of Life of Mothers with a Young Child with Cerebral Palsy

蕭小菁(Sheau-Jing Hsiao) ； 羅鈞令(Jin-Ling Lo)

《職能治療學會雜誌》 25卷1期 (2007/07) Pp. 1-11

https://doi.org/10.6594/JTOTA.2007.25(1).01

摘要

本研究主要目的在探討腦性麻痺幼兒母親的日常職能活動與生活品質。透過「日常活動記錄表」及「台灣簡明版世界衛生組織生活品質問卷」比較30位腦性麻痺幼兒母親及30位一般幼兒母親日常活動之類型、時間運用及其生活品質。研究結果發現，腦性麻痺幼兒母親用在照顧腦性麻痺孩子的時間明顯較一般幼兒母親為多，用在參與自我進修或休息的時間則較少，參與照顧他人的活動，也比較少。腦性麻痺幼兒母親之生活品質在心理健康及社會關係範疇與一般幼兒母親無明顯差異，但在生理健康及環境範疇則明顯較一般幼兒母親差。本研究結果有助於提醒臨床治療師在服務身心障礙孩童家庭時，除了服務身心障礙孩童外，應特別留意主要照顧者的生活安排及生活品質，並給予適時介入，以促進整個身心障礙孩童家庭的生活品質。

關鍵字

職能活動 ； 母親 ； 腦性麻痺 ； 生活品質

並列摘要

The purpose of this study was to examine and compare the time use and quality of life of mothers of young children with cerebral palsy with that of mothers of typically developing children. A diary-log was used to measure the participants´ time use during a weekday and the health-related quality of life was measured with the WHOQOL-BREF Taiwanese version. Data from 30 mothers of children with cerebral palsy and 30 mothers of typically developing children were analyzed. Mothers of children with cerebral palsy were found to spend more time in caring children with cerebral palsy and engage less in caring others, continuing education and rest than the comparison group. Mothers of children with cerebral palsy scored lower in domains of physical health and environment of the WHOQOL-BREF. The results of this study would remind clinicians to care of the daily occupations of the caregivers who have children with disabilities and provide necessary interventions to improve their quality of life. The whole families' quality of life will be facilitated.

並列關鍵字

Occupation ； Mother ； Cerebral Palsy ； Quality of Life