目的:嘹解母親在照顧血友病病童過程中的壓力源及其相關影響因素。材料與方法:採橫斷面調查研究方法,以北部及南部兩所醫學中心之血液科門診的血友病病童母親為研究對象,採自擬之結構性問卷為研究工具,共收集55位個案。結果:血友病病童母親之整體壓力感受介於1.95-4.65之間],平均值為3.40(SD=0.51),而在五項壓力源類別中,又以「疾病所帶來的壓力」感受平均值最高(M=4.09,SD=0.56);依序為「經濟方面的壓力」(M=3.65,SD=0.79)、「治療風險壓力」(M=3.55,SD=0.72)、「母親本身的壓力」(M=3.11,SD=0.81)、及「家人方面的壓力」(M=2.55,SD=0.84)。另外統計分析發現,病童母親的年齡、教育程度、病童的年紀、就學情形與經濟方面的壓力感受得分上有顯著不同。而沒有職業的病童母親則在家人方面上感受較大的壓力。結論:本研究可以作為血友病整體照護之參考,幫助醫謢人員更深入了解血友病童母親之壓力源,進而提供更適切的健康照顧。(慈濟醫學 2003; 15:45-53)
Objective: The purpose of this study was to investigate stressors and related factors in mothers of children with hemophilia. Materials and Methods: Across-sectional study was conducted. Subiects were mothers of chidren with hemophilia who were recruited from the hematological outpatient department of two medical centers in the southern and northern parts of Taiwan. A structured questionnaire was used for data collection. A total of 55 subjects were selected. Results: The average score of the mothers perception of stress was 3.40(range 1.95-4.65, SD=0.51). The stressors were classified into five categories. The most stressful category for the mother was the stress from disease (M=4.09, SD=0.56) followed by the stress from financial (M=3.65,SD=0.79),the stress from remedy risk (M=3.55,SD=0.72), the stress from mother herself (M=3.11,SD=0.81),and the stress from family(M2.55, SD=0.84). Furthermore, according to the statistical analysis, the age of the mother, level of educvation, the age of the child with hemopilia, and the condition of schooling had significant effects on the category of financeal stress. The unem-ployed mothers had higher family stress scores than employed mothers. Conclusion: The findings of this study could contribute to improve care for children with hemophilia. The results could also help medical professionals be aware of the mopnthers stress in caring for childrren with hemophilia so can provide more comprehensive health care.(Tzu Chi Med J 2003; 15:45-53)