顏面損傷者之生活品質及其影響因素之探討：以陽光社會福利基金會為例

臉部對人而言有重要意涵，顏面損傷（以下簡稱「顏損」）可能對個人生理、心理及社會關係產生衝擊，進而影響生活品質，但國內關於顏損者之生活品質的系統性研究極為有限。障礙研究中的醫療／個人模式將障礙視為個人問題，而社會模式則關注環境對人的限制，重視移除障礙、改變環境。本文研究目的為探討顏損者之生活品質狀況，並由醫療／個人模式與社會模式衍生之變項作為解釋顏損者生活品質的因素。本文研究方法以人口背景、顏損相關與社會環境變項為自變項，以「台灣簡明版世界衛生組織生活品質問卷」為依變項生活品質的測量工具，採分層配額隨機抽樣，於2015年透過陽光社福基金會招募面訪304位顏損者，並以次序邏輯斯與多元迴歸分析呈現顏損者之生活品質與其影響因素。本文研究結果發現相較於台灣常模及國外顏損者之生活品質調查結果，受訪顏損者整體生活品質較低；社會支持及社會參與因素對生活品質有較顯著的正向解釋力；此結果可供研究者及服務提供者參考。

關鍵字

顏面損傷；生活品質；社會支持；社會參與；障礙接納

並列摘要

Purpose: The face has important meanings for people. Facial disfigurement may have comprehensive impacts on people both physically and psychologically, as well as in social relations, thereby influencing the overall quality of life. Nevertheless, systematic research related to the quality of life among people with facial disfigurement is still extremely limited in Taiwan. The individual/ medical model and social model in disability studies were applied to explain the level of quality of life among people with facial disfigurement in this study. Methods: This study conducted a representative population-based survey in 2015 through face-to-face interviews involving 304 people with facial disfigurement. The interviewees were randomly sampled from the service users of the Sunshine Social Welfare Foundation. The concept of quality of life was measured by the WHOQOL-BREF (Taiwanese version), and factors associated with quality of life were divided into three groups: demographic backgrounds, facial impairment factors, and social environment factors. Descriptive statistics, ordinal logistic regression and multiple regression analyses were employed to present the features and factors associated with quality of life. Results: Compared to the findings drawn from the general population in Taiwan and people with facial disfigurement in the U.K. and Turkey administered with the same questionnaire (WHOQOL-BREF), the level of quality of life among our respondents was relatively lower. Regarding factors associated with their quality of life, the type and degree of facial disfigurement was significantly related to the physical domain; the variables of social support and social participation were significantly related to the four domains of quality of life. However, demographic variables were less significantly related to the quality of life as determined in the present study. Conclusions: The results of this study were found to be similar to those in the related literature; social support and social participation were constructive factors leading to the improvement of quality of life among people with facial disfigurement. The results of this study could be useful for researchers and service providers.

並列關鍵字

facial disfigurement ； quality of life ； social support ； social participation ； disability acceptance

參考文獻

林茂榮、姚開屏、黃景祥、王榮德（1999）。〈台灣版世界衛生組織生活品質問卷量尺語詞的選擇〉，《中華公共衛生雜誌》，18(4)，262-270。doi: 10.6288/CJPH1999-18-04-05 【Lin, M.-R., Yao, K.-P., Hwang, J.-S., & Wang, J.-D. (1999). Scale descriptor selection for Taiwan-version of questionnaire of World Health Organization quality of life. Chinese Journal of Public Health, 18(4), 262-270. doi: 10.6288/CJPH1999-18-04-05】

林耀盛、羅愔愔（2010）。〈患者與照顧者間照顧覺知落差對雙方心理與生活適應之影響：以婦癌病患為例〉，《中華輔導與諮商學報》，27，161-197。doi: 10.7082/CJGC.201003.0161 【Lin, Y.-S., & Lo, Y.-Y. (2010). The effects of discrepant views on care giving between gynecological cancer patients and their primary caregivers. Chinese Journal of Guidance and Counseling, 27, 161-197. doi: 10.7082/CJGC.201003.0161】

胡蓉、林金定（2009）。〈特殊需求學生主要照顧者壓力與健康相關生活品質相關性之研究〉，《身心障礙研究季刊》，7(2)，132-143。doi: 10.30072/JDR.200906.0004 【Hu, J., & Lin, J.-D. (2009). The relationship between stress and health-related quality of life on primary caregivers of special needs students. Journal of Disability Research, 7(2), 132-143. doi: 10.30072/JDR.200906.0004】

夏恆健（2009）。《低社經視覺障礙者生活品質相關因素之探討―以中部某區域教學醫院為例》。國立臺灣大學醫療機構管理研究所碩士論文。doi: 10.6342/NTU.2009.01142 【Hsia, H.-C. (2009). A study on factors associated with quality of life among patients with visual impairment: An example from a teaching hospital in central Taiwan (Unpublished master’s thesis). National Taiwan University, Taipei, Taiwan. doi: 10.6342/NTU.2009.01142】

姚開屏（2002）。〈台灣版世界衛生組織生活品質問卷之發展與應用〉。《台灣醫學》，6(2)，193-200。doi: 10.6320/FJM.2002.6(2).09 【Yao, K.-P. (2002). Development and applications of the WHOQOL-Taiwan version. Formosan Journal of Medicine, 6(2), 193-200. doi: 10.6320/FJM.2002.6(2).09】

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顏面損傷者之生活品質及其影響因素之探討：以陽光社會福利基金會為例

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