Exploring the Health-Related Quality of Life among Children with Moderate Asthma

探討中度氣喘兒童之健康相關生活品質

蔣立琦(Li-Chi Chiang)

《The Journal of Nursing Research》 13卷1期 (2005/03) Pp. 31-40

摘要

氣喘是台灣最常見的兒童慢性疾病之一，影響台灣超過10%之兒童。氣喘反覆的症狀／徵候以及複雜的疾病管理衝擊氣喘兒童的生活品質。本研究目的主要是透過深度訪談，以描述性質性研究方法，描述中度氣喘兒童健康相關生活品質的構面及內容。研究者訪談中部地區兩所醫學中心的11位6-12歲的氣喘兒童以及其母親，將訪談資料進行內容分析，共確認六項氣喘兒童健康相關生活品質的主題：(1)身體症狀／徵候之障礙；(2)活動之限制；(3)情緒壓抑；(4)親子關係不和睦；(5)學校社交生活受限；以及(6)疾病管理造成生活不便。這些發現綜觀氣喘對兒童生活品質影響之層面，包括身體、心理、社會領域，本研究結果將可以引導護理人員對氣喘兒童之健康相關生活品質具有較完整之考量。

關鍵字

健康相關生活品質 ； 氣喘兒童

並列摘要

Asthma is one of the most common chronic diseases, impacting more than 10% of children in Taiwan. The recurrent signs and symptoms and complexity of disease management impact the life quality of children with asthma. The purpose of this study was to describe the content and dimensions of health-related quality of life (HRQOL) among children with moderate asthma by descriptive qualitative research based on in-depth interviews. Eleven children, aged 6-12 years, and their mothers from two medical centers in central Taiwan were interviewed and tape recorded. The transcripts were analyzed using content analysis. Six themes relevant to the children's QOL with asthma were identified: (1) physical disturbances of signs/symptoms, (2) limitations of activity, (3) emotional distress, (4) discord in parent-child relationships, (5) restrictions in school social life and (6) daily inconvenience of managing the disease. These findings highlight the ways in which the overall quality of life of children is impacted by asthma including the physiological and psychosocial domains. The breadth of these findings may lead to greater insights into the nursing care of children with asthma.

並列關鍵字

health-related quality of life ； children with asthma

參考文獻

Bender, B. G.(1996).Measurement of quality of life in pediatric asthma clinical trials.Annals of Allergy Asthma Immunology.77,438-445.

Berg, B. L.(1998).Qualitative research methods for the social sciences.Boston:Allyn and Bacon.

Butz, A. M.,Riekert, K. A.,Eggleston, P.,Winkelstein, M.,Thompson, R. E.,Rand, C.(2004).Factors associated with preventive asthma care in inner-city children.Clinical Pediatrics.43(8),709-719.

Chiang, L. C.,Huang, J. L.,Chao, S. Y.(2001).Developing a scale of self-management behaviors of parents with asthmatic children in Taiwan through triangulation method.Journal of Nursing Research.9(1),87-97.

Chiang, L. C.,Huang, J. L.,Lu, C. M.(1999).Study of predisposing factors and self-management behaviors of school-age children with asthma and the impact of summer asthma camp.Journal of Nursing Research.7(4),307-320.