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Middle-Aged Female Spouses of Patients with Metastatic Cancer: Lived Experiences

照護轉移性癌症配偶之中年女性照顧者的生活經驗

摘要


背景 現今癌症治療使癌症存活率增加,然對於罹患轉移性癌症患者的家庭仍面臨著極大的衝擊,正處於中年期的男性患者之女性配偶,不可避免需肩負起多重角色,承受極大壓力,然甚少文獻針對中年女性配偶,了解其生活經驗。目的 本研究探討照護轉移性癌症患者之中年女性配偶的生活經驗。方法 本研究採質性研究,以立意取樣深度訪談台灣北部某教學醫院腫瘤科門診轉移性癌症病患的女性配偶,收案時間為一年。結果 共11位參與者,以內容分析法呈現四個主題,分別為「同時承受多面向的壓力」、「自我態度與價值觀的調整」、「發展有效的照護技巧」與「家庭成員與宗教的支持」等。結論/實務應用 轉移性癌症患者之台灣中年女性配偶承受著多面向的壓力與危機,多傾向使用家族間內在資源,而少運用如朋友、醫療專業人員等外在資源。醫療與社福機構,應積極主動協助罹癌患者女性配偶渡過此歷程。瞭解中年女性配偶的生活經驗有助於護理人員反思,如何提供照顧者適切的照護措施。

並列摘要


Background: Although the survival rate for cancer is increasing because of advances in treatment technology, cancer still comes as a great shock to the families of patients who are in the advanced stages of this disease. When a married, middle-aged man is diagnosed with advanced cancer, his spouse most often becomes his primary caregiver. However, few studies have studied the lived experience of these middle-aged spouses. Purpose: This study explores the lived experience of middle-aged female spouses of husbands diagnosed with advanced cancer. Methods: A qualitative design was used. In-depth interviews were conducted with participants whose spouses were being treated at the oncology outpatient department of a teaching hospital in northern Taiwan. The datawere collected with purposive sampling over a 12-month period. Results: A content analysis of 11 participant interviews revealed four themes: simultaneously bearing all layers of stress, changing of attitudes and values, developing the effective skills of caregiving, and gaining support from the family and from religion. Conclusions/Implications for Practice: Amiddle-aged female spouse faces many layers of stress andmany crises in caring for her husband with advanced cancer. Female spouses in Taiwan tend to rely significantlymore on internal resources (family) than external resources (friends and medical professionals). It is recommended that these families use external resources such as medical and socialwelfare systemsmore actively to facilitate their successful passage through these crises. Understanding the lived experiences of these female spouses helps nurses provide appropriate nursing interventions.

參考文獻


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被引用紀錄


Tsay, S. L., Ko, W. S., & Lin, K. P. (2017). The Lifestyle Change Experiences of Cancer Survivors. The Journal of Nursing Research, 25(5), 328-335. https://doi.org/10.1097/jnr.0000000000000178

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