The Perspectives of Iranian Patients with Multiple Sclerosis on Continuity of Care: A Qualitative Study

Background: Continuity in multiple sclerosis (MS) care has been cited as a critical feature of this care and necessary to improve medical outcomes. Purpose: This exploratory and descriptive research attempts to identify continuity of care from the experience and perspective of patientswithMS at two teaching hospitals and theMSSociety in Ahvaz, Iran. Methods: In this study, 23 patients with MS were selected through purposeful sampling. Data were collected through indepth and unstructured interviews and were analyzed using an inductive thematic analysis approach. Results: Four main themes emerged from the analysis: humanoriented attention, the necessity of purposeful planning, importance of responsibility, and caring with empathetic sensing. Conclusions/Implications for Practice: Because of the importance of professional caring practice to continuity of care for patients with MS, we suggest that healthcare providers should include these aspects in care planning.

並列關鍵字

multiple sclerosis ； care ； qualitative study ； continuity ； Iran

參考文獻

Adriaansen, M.,Van Achterberg, T.,Borm, G.(2008).The usefulness of the staff-patient interaction response scale for palliative care nursing for measuring the empathetic capacity of nursing students.Journal of Professional Nursing.24(5),315-323.

Google Scholar

Aghamohammadi-Kalkhoran, M.,Valizadeh, S.,Mohammadi, E.,Ebrahimi, H.,Karimollahi, M.(2012).Health according to the experiences of Iranian women with diabetes: A phenomenological study.Nursing and Health Sciences.14(3),285-291.

Google Scholar

Birks, M.,Mills, J.(2011).Grounded theory: A practical guide.London, England:Sage.

Google Scholar

Blank, C. W.,Finlayson, M.(2007).Exploring the impact of multiple sclerosis on couples: A pilot study.Canadian Journal of Occupational Therapy.74(2),134-142.

Google Scholar

Bolton, L. B.,Aydin, C. E.,Donaldson, N.,Brown, D. S.,Nelson, M. S.,Harms, D.(2003).Nurse staffing and patient perceptions of nursing care.The Journal of Nursing Administration.33(11),607-614.

Google Scholar

被引用紀錄

黃翊涵（2012）。救災物資臨時集散場所選擇評估系統之建立〔碩士論文，國立交通大學〕。華藝線上圖書館。https://doi.org/10.6842/NCTU.2012.00803

林辰蔚（2014）。葫蘆素E誘導人類鼻咽和咽癌細胞株細胞週期G2/M 停滯及誘發細胞自噬之探討〔碩士論文，長榮大學〕。華藝線上圖書館。https://doi.org/10.6833/CJCU.2014.00095

延伸閱讀

Azad, A., Taghizadeh, G., & Khaneghini, A. (2011). Assessments of the Reliability of the Iranian Version of the Berg Balance Scale in Patients with Multiple Sclerosis. Acta Neurologica Taiwanica, 20(1), 22-28. https://doi.org/10.29819/ANT.201103.0004
Sadeghi, T., Nayeri, N. D., & Abbaszadeh, A. (2014). Iranian Families' Experience of Receiving Support During Their Patients' Surgical Process: Qualitative Study. The Journal of Nursing Research, 22(4), 268-274. https://doi.org/10.1097/jnr.0000000000000055
Aljumah, M., Alroughani, R., Alsharoqi, I., Bohlega, S. A., Dahdaleh, M., Deleu, D., Esmat, K., Khalifa, A., Sahraian, M. A., Szólics, M., AlTahan, A., Yamout, B. I., Rieckmann, P., & Daif, A. (2013). Future of Management of Multiple Sclerosis in the Middle East: A Consensus View from Specialists in Ten Countries. Multiple Sclerosis International, 2013(), 292-297. https://doi.org/10.1155/2013/952321
Etemadifar, M., Roomizadeh, P., Abtahi, S. H., Sajjadi, S., Abedini, A., Golabbakhsh, A., Esfahani, M. F., & Akbari, M. (2012). Linkage of Multiple Sclerosis and Guillain-Barre Syndrome: A Population-Based Survey in Isfahan, Iran. Autoimmune Diseases, 2012(), 70-75. https://doi.org/10.1155/2012/232139
李培瑄、林藍萍、徐尚為、林金定（2013）。Long-term Trends in Outpatient Care and Medical Expenditure of Patients with Multiple Sclerosis。身心障礙研究季刊，11(1)，16-26。https://www.airitilibrary.com/Article/Detail?DocID=17292832-201303-201304220028-201304220028-16-26

國際替代計量

The Perspectives of Iranian Patients with Multiple Sclerosis on Continuity of Care: A Qualitative Study

全文下載

主題瀏覽