截肢病患支持團體的發展與設計

The Development and Design of an Amputee Support Group

劉棻(Fen Liu) ； 劉雪娥(Hsueh-Erh Liu)

《高雄護理雜誌》 28卷3期 (2011/12) Pp. 31-41

https://doi.org/10.6692/KJN-2011-28-3-4

摘要

台灣每年有超過6800人接受下肢截肢，且截肢5年後的存活率只有50%。截肢對病人的影響是終生的、且是多面向的，包括身體功能降低、喪失獨立性、情緒的煎熬、身體心像紊亂、社交隔離、及生活品質降低。文獻曾報導截肢患者愈早和其他截肢病患接觸，例如參與截肢患者支持團體，病患的心理社會調適愈好。透過支持團體的運作，病患可獲得正向的支持脈絡、減輕壓力以及和情境相似的病友分享經驗。歐美國家許多醫院或復健中心都有設立截肢病患專屬的支持團體，然而在台灣卻付之闕如。本文的目的是藉由描述發展「截肢患者支持團體」的過程，分享經驗，期望可提供醫護人員未來發展截肢患者出院計畫或持續性照護之參考。更希望國內醫院或義肢復健中心能瞭解截肢患者的需求，成立適合台灣截肢病患的支持團體，以提昇整體照護品質。

關鍵字

截肢 ； 截肢患者 ； 支持團體

並列摘要

More than 6,800 lower extremity amputations are performed annually in Taiwan, and the 5-year survival rates are estimated at 50%. The impact of amputation is life long and multifaceted, involving lowered functional level, loss of independence, emotional distress, body image disturbance, social isolation, and decreased quality of life. Some literatures reported that early contact with other amputees, such as attending amputee support groups are extremely helpful in the psychosocial adjustment of this patient group. Through a support group process, amputees will gain a positive network, relieve some stress and tension, and share their experiences with people who have similar situation. Many amputee support groups are held in hospitals or rehabilitation centers in the United States and Europe. However, currently such programs are unavailable in Taiwan. The aims of this paper are to describe the development and design of an amputee support group and share the experience of group process. It is anticipated that this paper will provide information for health professionals to develop the discharge plan and continuing care for patients with amputation in the future. In addition, we hope health professionals can acknowledge the real needs of amputees and establish amputee support groups for Taiwanese amputees to promote the quality of care.

並列關鍵字

amputation ； amputees ； support group