一位初診斷紅斑性狼瘡青年疾病適應之護理經驗

Nursing Experience of Caring for the Process of Disease Adaptation of an Adolescent with Newly Diagnosed Systemic Lupus Erythematosus

潘錦樺(Jin-Hua Pan) ； 許芳華(Fang-Hua Hsu)

《高雄護理雜誌》 35卷2期 (2018/08) Pp. 84-94

https://doi.org/10.6692/KJN.201808_35(2).0008

摘要

本文描述一位初診斷紅斑性狼瘡青少年個案之護理經驗，個案因全身皮膚紅紫斑、泌尿道感染入院，護理期間104年02月20日至03月01日，藉由觀察、會談、身體評估及電訪追蹤，以Gordon 11項健康性功能型態評估收集資料，確立健康問題：現存性感染、無效性健康維護能力、身體心像紊亂。青春期個案於外觀的變化，不願接納自己，且疾病適應不良，筆者提供個案皮膚照護增進身體舒適及主動關心個案及社工師介入，引導個案說出感受，個別化認識疾病與自我照護，鼓勵案母及同儕多互動，促進個案提升自信心，接納自我，透過個案對疾病了解，學會返家自我照護方式，奠定與疾病共存概念，達到良好的適應狀態。

關鍵字

紅斑性狼瘡 ； 疾病適應 ； 身體心像紊亂

並列摘要

This article describes a nursing experience for the initial diagnosis of lupus erythematosus juvenile cases owing to systemic skin red erythema, urinary tract infection admission, over a care period of 2015 from February 20 to March 01, by observation, talks, physical assessment and tracking the data, using Gordon’s 11 health functional assessments to collect information and establish health problems consisting of existing infection, ineffective health maintenance ability, and body image disturbance. Adolescent patients faced with the appearance of such changes do not want to accept the situation and they adapt to the disease poorly. The author provided the patient with appropriate skin care to enhance physical comfort and active care of the case was secured with social workers also being involved, to guide the patient to express feelings, individual awareness of the disease, and self-care. Peer interaction was also enjoined to promote self-confidence in the patient, to encourage self-acceptance, and understanding of the disease, thereby learning to return home to self-care via laying the concept of coexistence with the disease, ultimately achieving a good state of adaptation.

並列關鍵字

Systemic lupus erythematosus ； Disease adaptation ； Body image disturbance

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