以深度訪談了解未完成都治療程之結核病患者的疾病感受

結核病是臺灣個案數及死亡數最多的法定傳染病，病人常因種種因素未能長期規則服藥，不但無法治癒，而繼續傳染更可能產生抗藥性。本研究目的為了解未完成都治療程之結核病患者的疾病感受。研究方法採用質性研究方法，進行一對一深度的訪談，訪談文本使用主題分析。研究對象以南台灣的結核病治療困難個案為研究對象，28人進行訪談。研究結果包括五個主題分別是：（一）烙印影響人際關係（二）長期服藥的痛苦（三）需要單一整合性治療單位（四）需要社會支持系統，以及（五）渴望醫護人員多些同理心。本研究建議醫護人員及早提供患者醫療資訊，可以減輕副作用的藥物，整合單一的TB門診，使得完善的服務到位，且加強溝通及同理教育訓練，提供更人性化的服務，避免個案成為困難治療個案。

關鍵字

結核病；烙印；服藥障礙；疾病感受；主題分析；都治治療

並列摘要

Tuberculosis is the statutory infectious disease with the largest number of cases and deaths in Taiwan. The content and load of the care of tuberculosis cases are extremely difficult and heavy. The purpose of this study was to understand the perceptions of tuberculosis patients who have not completed the course of DOTs. Qualitative research methods were conducted, being one-on-one in-depth interviews with the using thematic analysis. Research participants recruited 28 people who were interviewed based on the difficult cases of tuberculosis treatment in southern Taiwan. The results of the study included five themes: (1) the impact of branding on interpersonal relationships; (2) the pain of long-term medication; (3) the need for a single integrated treatment unit; (4) the need for a social support system; and (5) the need of empathy from medical staff. This study recommends that healthcare professionals should provide information early with a high level of empathy, prescribe drugs that can reduce TB drug side-effects, integrate a single TB clinic that can provide perfect service in situ, and give perfect training for the provision of more humanistic medical services that prevent TB cases from becoming difficult to treat.

並列關鍵字

Tuberculosis ； Stigmatization ； Barriers to medication ； Disease perception ； Thematic analysis ； DOTs

參考文獻

王文科、王智弘(2010)．質的研究的信度和效度．彰化師大教育學報，17，29-50。https://doi.org/ 10.6769/JENCUE.201006.0029

廖秋選(2014)．結核病防治措施對病患基本人權影響之研究［碩士論文，國立暨南國際大學公共行政與政策學系學位論文］．臺灣博碩士論文知識加值系統。https://hdl.handle.net/11296/fk9w2m

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101.

Basri, C., Bergström, K., Walton, W., Surya, A., Voskens, J., & Metha, F. (2009). Sustainable scaling up of good quality health worker education for tuberculosis control in Indonesia: A case study. Human Resources for Health, 7(1), 1-a. https://doi.org/10.1186/1478-4491-7-85

Bradshaw, C., Atkinson, S., & Doody, O. (2017). Employing a qualitative description approach in health care research. Global Qualitative Nursing Research, 4, 1-8. https://doi.org/10.1177/2333393617742282

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以深度訪談了解未完成都治療程之結核病患者的疾病感受

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