本文探討一位初次診斷急性骨髓性白血病且需獨自照顧輕度智能障礙女兒的患者,因首次罹癌心理承受巨大衝擊,對於疾病與治療的不確定性、日後自我照護,內心產生極大焦慮;原可獨自勝任母親的角色,卻因疾病被迫改變原有的家庭照護模式。筆者於2021年6月7日至7月24日照護期間,透過觀察、訪談及身體檢查評估,確立個案存在無效性保護能力、自我照顧能力增進的準備度/與疾病認知和返家自我照護技巧不足等有關、家庭運作過程紊亂之健康問題。以Swanson關懷理論作為照護指引,運用陪伴、關懷、同理態度與個案建立良好的護病關係,提供個別性衛教及心理支持,讓個案以正向的態度面對治療,學習解決問題的能力,並由醫療團隊的介入提供適切後續家庭照護與資源,以提升個案日後治療照護及生活品質,冀望此照護經驗能提供臨床護理人員參考。
This academic dissertation delves into the experiences of a first-time diagnosis of acute myeloid leukemia in a patient. The patient faced not only the uncertainty surrounding their illness and its treatment but also the responsibility of caring for a mildly intellectually disabled daughter, causing them considerable anxiety about her future care. Originally she was a excellent mother, but now she needs to change the models of home care because of her illness. The study was conducted during a caregiving period from June 7, 2021, to July 24, 2021, utilizing a multi-faceted approach involving observation, interviews, and physical examinations to assess the patient's lack of decision-making capacity and readiness for enhanced self-care and interruptedly family processed health concerns related to disease cognition and deficiency in home-based self-care skills. Drawing upon Swanson's Theory of Caring as the guiding framework for this study, the author employed techniques such as companionship, empathy, and a caring attitude to establish a strong therapeutic relationship with the patient. Furthermore, the study provided individualized health education and psychological support to empower the patient to confront their treatment with a positive mindset while equipping them with problem-solving skills. The involvement of the healthcare team played a crucial role in delivering appropriate follow-up care and resources for future home-based care. The overarching goal of this research was to enhance the patient's overall quality of life, both in terms of treatment and caregiving, with the aspiration that this caregiving experience may serve as a valuable reference point for clinical nursing professionals.