由癌症病友支持的領航談台灣癌症資源中心的服務

Patient Navigation for Cancer Support: The Cancer Resource Center in Taiwan

邱秀渝(Shiu-Yu C. Katie Lee) ； 王正旭(Cheng-Hsu Wang) ； 謝政毅(Cheng-I Hsieh) ； 蘇連瓔(Lien-Ying Su) ； 戚繼玲(Chi-Ling Chi) ； 呂嘉玲(Chia-Ling Lu)

《腫瘤護理雜誌》 16卷增訂刊 (2016/10) Pp. 5-20

https://doi.org/10.3966/168395442016101603001

摘要

醫療科技進步，癌症存活率提升，但癌症或治療仍對病人身心社會的衝擊仍高，病人及其家人的需求亦趨複雜。滿足癌症病患與家屬的需求，提供心理社會支持是癌症護理的核心精神。因應病患與家屬的支持需求，近年來國際癌症組織強調癌症病人領航服務，除了協助癌症診治、症狀與副作用緩解之外，更提供資訊或衛教指導、運用資源增進心理社會支持與自我療癒；對於弱勢族群，更強調連結社會醫療福利與救助資源以維繫所需的社會、經濟與家庭功能，確保病患能有適切的醫療照護之外，滿足身心社會支持需求。國內也在政府、醫療院所與民間組織合作之下，建立醫療機構型式的癌症資源中心服務，整合癌症資源，提供癌症教育、團體支持、康復服務、資源連結等服務。本文將藉由癌症病友與家屬支持需求與障礙議題，介紹國際領航服務的發展與國內癌症資源中心服務運作的概要，以作為癌症護理人員提供照護的參考。

關鍵字

癌症支持照護需求 ； 癌症資源中心 ； 癌症病人領航

並列摘要

Despite the significant improvements in oncology prevention, treatment, cancer care and cancer survival rate, cancer and treatment related physical and psychosocial impacts on the patients and their family are still issues that can't be overlooked. Cancer patients and their family report rising unmet supportive care needs. It is a critical role of oncology nursing to provide appropriate psychosocial support to ensure the fulfillment of patients' needs. International cancer organizations endorse cancer patient navigation programs not only to reduce barriers in cancer prevention and treatments but also to promote cancer supportive care. On top of the cancer screening, cancer treatment and symptom management, patient navigation programs also provide information and patient education, and connect resources in psychosocial support. For the minority and vulnerable groups, navigation of financial or social support can further reduce barriers in receiving appropriate cancer treatment and care and thus help restore patients' quality of life. Upon the recent collaborations of the Taiwan government with hospitals and non-governmental cancer organizations, Cancer Resource Service was built as a national initiative to provide patient education, cancer resource support and to promote quality of cancer care. This paper will review the needs and barriers in cancer patients and family, and discuss the international trend of cancer patient navigation and the navigation support provided by the Cancer Resource Center in Taiwan.

並列關鍵字

Cancer Supportive Needs ； Cancer Resource Center ； Cancer Patient Navigation

參考文獻

Lin, C. R., Chen, S. C., Chang, J. T. C., Fang, Y. Y., & Lai, Y. H. (2016). Fear of cancer recurrence and its impacts on quality of life in family caregivers of patients with head and neck cancers. The Journal of Nursing Research, 24(3), 240-248. doi: 10.1097/jnr.0000000000000169

Aiello Bowles, E. J., Tuzzio, L., Wiese, C. J., Kirlin, B., Greene, S. M., Clauser, S. B., & Wagner, E. H. (2008). Understanding high-quality cancer care: a summary of expert perspectives. Cancer, 112(4), 934-942. doi: 10.1002/cncr.23250 [doi]

Basch, E. M., Thaler, H. T., Shi, W., Yakren, S., & Schrag, D. (2004). Use of information resources by patients with cancer and their companions. Cancer, 100(11), 2476-2483. doi: 10.1002/cncr.20261

Cantril, C., & Haylock, P. J. (2013). Patient navigation in the oncology care setting. Semin Oncol Nurs, 29(2), 76-90. doi: 10.1016/j.soncn.2013.02.003

Cardoso, F., Bese, N., Distelhorst, S. R., Bevilacqua, J. L., Ginsburg, O., Grunberg, S. M., ... Anderson, B. O. (2013). Supportive care during treatment for breast cancer: Resource allocations in low- and middle-income countries. A Breast Health Global Initiative 2013 consensus statement. Breast, 22(5), 593-605. doi: 10.1016/j.breast.2013.07.050