癌症兒童家庭正常化

Normalization in Families of Children with Cancer

蔡素蕙(Su-Hui Tsai) ； 李雅玲(Ya-Ling Lee)

《腫瘤護理雜誌》 21卷1期 (2021/06) Pp. 19-28

https://doi.org/10.6880/TJON.202106_21(1).02

摘要

隨著醫療品質的提升，使癌症兒童的存活率提高及平均餘命延長。在歷經初診的恐慌後，癌症兒童必須開始接受長期的治療和追蹤。為了與疾病長久共處之時，能維持和一般健康人正常的生活型態，故產生「正常化」的趨力。本文期藉由Walker和Avant（2019）提出的方法對癌症兒童家庭正常化進行概念分析，界定正常化的定義性特徵及探討其前因、後果和影響因子，提供實證篩檢工具，並列舉典型案例、邊緣案例與相反案例，以釐清其概念。目前國內尚未以正常化觀點探討癌症兒童家庭在因應疾病的過程，希望藉由此文引領國內學者學習評估癌症兒童家庭正常化的需求、介入正常化措施以及了解正常化的結果。期許未來醫護人員能以正常化之觀點，引領癌症兒童家庭在面對疾病之際能得到良好的因應能力。

關鍵字

正常化 ； 癌症兒童 ； 慢性疾病 ； 概念分析

並列摘要

Improvements in medical technology and care quality have raised the survival rate of children with cancer and extended their lifespan. After undergoing the panic of initial diagnosis, children with cancer need to receive long-term treatment and follow-up. To coexist with the disease and maintain a normal lifestyle similar to that of healthy people, the families of children with cancer have a tendency toward ＂normalization.＂ This paper uses the methodology proposed by Walker and Avant (2019) to carry out a conceptual analysis of normalization; identifies the definitions, characteristics, antecedents, consequences and influencing factors of normalization; and provides empirical screen measurements and examples of typical, borderline, and contrary cases to clarify the concept of normalization. In Taiwan, the concept of normalization has not been explored in families with children receiving pediatric oncology care. We hope that this paper will guide Taiwanese scholars in assessing the need for normalization, performing interventions for normalization, and understanding the effects of normalization on the families of children with cancer. We also expect that in the future, medical personnel will consider normalization in helping the families of children with cancer acquire the ability to cope with the disease well.

並列關鍵字

normalization ； cancer children ； chronic disease ； concept analysis

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