Experiences of Coping for Caregivers of Adolescents with Intellectual Disability in Edinburgh, UK

探討英國愛丁堡智能不足青少年照顧者之照護因應經驗

林玫君(Mei-Chun Lin)

《耕莘學報》 8期 (2010/06) Pp. 19-34

https://doi.org/10.29855/JCTCN.201006.0003

摘要

照護情境是動態且緊張的。雖然探討照顧者的相關研究很多，但探討照護因應過程的縱貫性研究卻很少。青少年時期被認為是家庭發展的一個重要階段。本研究的主題是在探討、確認及描述照顧者如何因應隨著時間改變的照護需求。研究設計採質性縱貫性紮根理論法。透過照護者基金會的協助，共收案六位智能障礙青少年照顧者。每位照顧者皆訪談三次：第一次、六個月後、十八個月後。訪談採半結構式的訪談指引。每一次訪談皆有數位錄音及譯稿。研究分析採用不斷比較分析法及應用QSR NVivo質性電腦軟體做資料管理。研究結果顯示四個型態的因應策略：經驗學習、情緒宣洩、主導權、及生活哲理。重要地，不論是哪一種因應策略只要能夠緩解壓力說是有效的。因應過程是多面向的，任何因應策略的選擇也與資源的可利用性有關。

關鍵字

照顧者 ； 因應策略 ； 智能不足青少年 ； 紮根理論

並列摘要

The dynamics of caregiving situation is stressful. Although much research has been carried out in this field, there was still a lack of agreement about the process of coping in the caregiving is poorly understood, and also a poverty of longitudinal investigation Adolescence is recognized as a critical phase for individuals with intellectual disability and for their families The overall aim of this study was to explore, identify and describe how caregivers cope with their caregiving demands over time Qualitative longitudinal design using a grounded theory approach was applied Six caregivers of adolescents with intellectual disability were recruited from the caregivers' organization There were three interviews carried out with each caregiver at the beginning, 6-month, and 18-month later The interviews were semi-structured Each interview was digital-recorded and transcribed. A constant comparative method was used aided by QRS NVivo. The finding of the study identified four types of coping strategies: Learning experience; Emotional release; The sense of control; and Approach to life. Importantly whatever the coping strategies being used if it can ameliorate with the stressor would be more effective The process of coping is multidimensional The changes of adopting any of coping strategies relate to available coping resources.

並列關鍵字

caregiver ； coping strategies ； adolescents with intellectual disability ； grounded theory approach