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建構人類免疫缺乏病毒感染者的友善預立醫療照護諮商

Establishing Friendly Advance Care Planning in Persons with HIV

摘要


隨著醫療環境進步,人類免疫缺乏病毒感染者(以下簡稱愛滋病與HIV感染者)死亡率大幅下降,以往將愛滋病(為後天免疫缺乏病毒,為感染HIV病毒的末期表現)視為絕症的思維逐漸改變。此外愛滋病存在於民眾心中的刻板印象與多元性別族群的特色,讓HIV感染者在《病人自主權利法》中的預立醫療照護諮商成為臨床一門新的課題。本文透過文獻回顧(Review Articles)與筆者實務經驗,探討HIV感染者隨著疾病控制的進步與慢性病化的過程,讓預立醫療照護諮商介入的時機有些變化,並且討論患者在諮商過程中的特定需求。此外也對醫療機構與相關執行團隊提出HIV感染者之預立醫療照護諮商工作相關建議與具備多元性別文化識能之考量,期望為這群病人建立一個友善且更有效益的預立醫療照護諮商環境與模式。

並列摘要


The perception of HIV as a terminal disease has gradually changed, thanks to decline in the death rate of HIV patients aided by medical advances. Meanwhile, reducing social stigma and discrimination about patients living with HIV, especially toward LGBTQ (Lesbian, Gay, Bisexual, Transgender, Queer) patients has become a new challenge in Advance Care Planning. This study aims to explore the process of disease control and chronic condition of HIV patients. Referencing review articles and practical experience indicated by altering the timing of implementing Advance Care Planning and discussing specific needs with HIV patients, effectiveness of treatment would be enhanced. This study also suggests further advice to medical teams who conduct Advance Care Planning on HIV-specific symptoms and emphasizes the importance of Gender and Cultural Literacy, so as to help forming HIV friendly and effective Advance Care Planning environments.

被引用紀錄


蔡宗達、楊君宜(2019)。推動預立醫療照護諮商之經驗-以臺北市立聯合醫院為例長期照護雜誌23(3),177-183。https://doi.org/10.6317/LTC.201912_23(3).0002

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