照護一位肌萎縮側索硬化症病患之護理經驗

Nursing Experience of Caring an Amyotrophic Lateral Sclerosis Patient

王琇霈(Hsiu-Pei Wang) ； 林靜娟(Chiu-Chuan Lin) ； 賴秋絨(Rong-Chiu Lai)

《弘光學報》 54期 (2008/12) Pp. 53-64

https://doi.org/10.6615/HAR.200812.54.05

摘要

肌萎縮側索硬化症(amyotrophic lateral sclerosis)是一種運動神經元細胞逐漸退化死亡的疾病，俗稱「漸凍人」，臨床上以症狀支持療法為主，患者終將會因呼吸衰竭而死亡。本文為照護一位肌萎縮側索硬化症病患之護理經驗，筆者於95年9月21日至95年9月28日照護此個案，運用Gordon's十一項功能型態進行評估，發現有「潛在危險性廢用症候群」、「言詞溝通障礙」、「照顧者角色緊張」及「無力感」等四項護理問題，針對問題提供適切的護理措施，以提升個案及家屬自我照護的能力，預防合併症的發生，增加非語言的溝通技巧，提供個案及家屬身心靈的需求，透過專業醫療團隊的共同照護，讓個案在遭受疾病的侵襲時能正向面對，把握自己內在生命的價值！

關鍵字

肌萎縮側索硬化症 ； 運動神經元疾病

並列摘要

Amyotrophic lateral sclerosis, or Lou Gehrig’s disease, is a kind of disease which causes motor neurons to degenerate. Currently, the cause has not yet be discovered, we could only use Riluzole medicine to slow down the losing of the muscle’s strength. The clinical treatment is the supportive therapy. The patient would eventually die of respiratory failure. This article is about the experience of caring an amyotrophic lateral sclerosis patient. During the nursing process, the data is record by using Gordon’s assessment tools for health patterns. The finding showed that the cases problems are risk for disuse syndrome, verbal and communication disorder, distrait of caregiver and powerlessness. Focusing on the problems. We provided suitable nursing step, to elevate the case and the relative’s self caring ability, prevent complications to occur, to improve the skill of non-verbal communication and to satisfy the patient and the relatives physical and mental needs. Through the card from professional health care team, the patient could face the disease positively and cherish the value of life.

並列關鍵字

Amyotrophic lateral sclerosis ； motor neurons disease

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