- 期刊
照護一位罹患馬凡氏症候群的年輕女性術後護理經驗
Nursing Care Experience of a Young Woman Suffering from Marfan Syndrome after Aortic Surgery
摘要
本文旨在描述一位馬凡氏症候群的年輕女性，因運動時胸悶發現主動脈根部擴張入院進行手術，術後面對身體病痛與內心無法接受自我的壓力調適過程。照護期間為2015年8月16日至8月24日，藉由會談、觀察與實際照護收集資料，以Gordon 11項功能性健康型態評估工具確立個案「疼痛」、「活動無耐力」、「身體心像改變」及「焦慮」等問題。透過主動關懷拉近護病距離，傾聽個案想法並表達同理建立信任感，教導傷口固定技巧、緩解疼痛問題，進而教導漸進式活動並共同訂立復健訓練計劃來增加活動耐力，利用圖文並茂的彩色衛教本教導個案了解疾病進展與復原狀況；安排年齡及病況相近的病友分享以激發信心與希望，協助身體心像重建；教導自我照護技能，並引導正向思考及肯定自我價值，有效減緩焦慮情緒，建議未來科部能成立馬凡氏症候群關懷團體，能讓病友從中獲得更多知識與病程經歷，對出院返家照顧抱有正面的想法，藉此護理經驗分享給日後照護類似個案參考。
並列摘要
This article described the nursing care experience of a young female patient with Marfan syndrome after aortic surgery, who suffered from physical pain and the inability to accept herself. The period of nursing care was from August 16 to 24, 2015. Based on Gordon's 11 Functional Health Patterns, the nurse assessed the client's problems by taking observations and conducting interviews. After completing nursing assessments, pain, intolerable activity, body image changes, and anxiety were identified as problems. Nursing care included teaching the patient wound-support skills to relieve pain, employing a progressive activity and joint rehabilitation plan to increase activity endurance, arranging for sharing experiences with patients of a similar age and condition to increase confidence and rebuilding body image, and teaching self-care skills to reduce anxiety. All nursing interventions were helpful in improving the patient's body-mind-spirit well-being. In addition, an idea to establish a Marfan syndrome care group to offer experiences, share opportunities, and increase positive patient attitudes was suggested. This nursing experience is shared to be a reference for future similar.