失智症者主要家庭照顧者自我效能及照顧負荷關係之研究

本研究主要探討失智症者家庭照顧者照顧自我效能與照顧負荷之相關性，及探討失智症者及家庭照顧者個人屬性對於照顧負荷及照顧自我效能的影響。資料採問卷調查法收集，對中部某基金會之居家服務單位、家庭照顧者支持團體、失智症日間照顧中心家屬群組以及臉書失智症相關社團。共取得問卷134份，扣除其中未完整的9份，共獲得有效問券125份。問卷分析結果：被照顧者以女性、患阿茲海默症、中度依賴失智症者者為主，此外被照顧者日常生活功能越差、照顧時數愈高則照顧者之照顧負荷越重，照顧負荷愈重則照顧者健康狀況愈差，而當照顧者身份為未婚者、照顧後辭職沒工作者自我犠牲照顧負荷最高，照顧者為兒子依賴關係照顧負荷最高，照顧者身份為女兒者能力不足照顧負荷較高；自我效能方面照顧者已婚、照常上班，與失智症者關係為媳婦的照顧獲得喘息的自我效能較高。至於被照顧者的行為精神症狀對於照顧自我效能及照顧負荷也有不同程度的影響。自我效能對照顧負荷之間的關係有顯著的影響，以自我效能各面向分析，獲得喘息機會自我效能和依賴關係照顧負荷、自我犠牲照顧負荷、能力不足照顧負荷有顯著負相關，而控制沮喪想法自我效能和自我犠牲照顧負荷、負面想法照顧負荷有顯著負相關，回應干擾行為自我效能與負面想法照顧負荷有顯著負相關。透過研究之研究發現，照顧者自我效能和照顧負荷有直接的關係，因此就研究結果提供日後失智症家庭照顧者相關議題之實務面及研究面之建議，期望能作為失智症家庭照顧者支持系統執行上之參考，讓失智症家庭照顧者之照顧需求得以獲得更為完善的關注，進而促進家庭照顧者之相關福祉。

關鍵字

失智症；家庭照顧者；自我效能；照顧負荷

並列摘要

This study mainly explores the correlation between caring self-efficacy and caring burden of family caregivers of persons with dementia, and explores the influence of individual attributes of dementia and family caregivers on caring burden and caring self-efficacy. The data were collected by questionnaire method, and the data were collected from the home service unit of a foundation in central Taiwan, a support group for family caregivers, a family group of a dementia day care center, and a Facebook dementia-related community. A total of 134 questionnaires were obtained, and 125 valid questionnaires were obtained after deducting 9 incomplete questionnaires. Questionnaire analysis results: The care recipients are mainly women, people with Alzheimer's disease, and moderately dependent dementia. In addition, the worse the daily function of the care recipients and the higher the care hours, the greater the care burden of the caregivers. The heavier the care burden, the worse the health of the caregiver. When the caregiver is unmarried, resigned and has no job after taking care of themselves, the caring burden is the highest, the caregiver is the son, and the caregiver is the daughter. Insufficient care burden is higher; in terms of self-efficacy, the caregiver is married and goes to work as usual, and the relationship with the dementia patient is the self-efficacy of getting respite from the care of the daughter-in-law. As for the behavioral and mental symptoms of the care recipients, they also have varying degrees of influence on caring self-efficacy and caring burden. Self-efficacy has a significant impact on the relationship between caring burden. In terms of self-efficacy, all aspects of self-efficacy are analyzed. There is a significant negative correlation between self-efficacy and dependency caring burden, self-sacrificing caring burden, and incapacity caring burden, while controlling depression thoughts Self-efficacy was significantly negatively correlated with self-sacrificing care burden and negative thought care burden, and self-efficacy in response to interference behavior was significantly negatively correlated with negative thought care burden. Through the research, it is found that there is a direct relationship between carer's self-efficacy and caring burden. Therefore, based on the research results, we will provide practical and research suggestions for future dementia family caregivers, hoping to serve as a dementia family caregiver. The reference in the implementation of the support system allows the care needs of family caregivers with dementia to receive more complete attention, thereby promoting the related well-being of family caregivers.