傾斜的童年：未成年家庭照顧者照顧歷程的初探

Obliquely Childhood - A Preliminary Study of Young Carers

張芷芸(chi-yung chang)

指導教授 ： 陳芬苓

元智大學/人文社會學院/社會暨政策科學學系/碩士(2011年)

摘要

摘 要
本論文研製之目的期望了解，因雙親、祖父母、手足等家庭成員中有一方因身體失能、罹患慢性病、心理性疾病而處於需要被照顧的狀況，而家庭中原因擔負起照顧責任之成年人因故缺席，因而必須承擔家中的照顧任務之十八歲以下之未成年者。
因為現階段照顧服務體系中尚無法正確識別未成年家庭照顧者的角色，並提供福利服務支持，本研究以質性研究中深度訪談及參與觀察法方式，共訪談十二個家庭及十五位未成年家庭照顧者，研究結果呈現未成年家庭照顧者經歷之生命歷程、生活型態及其與眾不同之童年生涯。研究假設這些生活在單親或雙親家庭中的未成年家庭照顧者因須承擔照顧雙親或手足之責任，會遭遇特殊生活衝擊或限制，且不同家庭中有許多複雜多樣的照顧樣貌及困境，福利政策之制定困境；包括未成年家庭照顧者之工作內容、頻率、工作困難程度以及孩子經歷了多久的照顧工作、重要的協助者，以及在照顧歷程中孩子錯過了哪些重要經驗，期望能提供福利服務政策作為參考，使孩子們能獲得適當的協助。

關鍵字

未成年家庭照顧者 ； 角色理論

並列摘要

ABSTRACT
This study show the lives, experiences and needs of children who care - those children under the age of 18 who provide primary care for a sick, disabled or elderly adult in the home. It presents the lives of these children, their responsibilities, their commitments, their pain and their fears. It paints a picture of neglect both by professionals paid to care as well as by other family members.
Rather than defining young carers by the level of their caring responsibilities and the absence of formal welfare system support, we defined, and identified, young carers by the impact on their lifestyles, experiences and childhood. The hypothesis was that a child in a lone parent family or two parent family, who looked after a parent or sibling, could experience many of the impact, or restriction on their childhood, we believed, would depend on a number of complex and inter-related familial, social and policy-related factors, including the time spent caring, the level of responsibility, the intimacy or intensity of the tasks performed, the things ‘lost’ to the child, who shares the care or assists the child, the timing of care (when care is provided and how long it takes). We believed the provision of welfare and policy can help .

並列關鍵字

young caregiver ； role theory

參考文獻

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