淋巴癌存活者健康照護需求、失志與生活品質之探討

與台灣全國癌症五年存活率55.7%相比，淋巴癌的5年相對存活率55.2~80.5%明顯較高。，而面對長期存活的疾病及治療產生的身心症狀，不但會造成生活品質明顯的影響，也會衍生出相關的健康照護需求。本研究目的為：(1)探討淋巴癌存活者健康照護需求、失志與生活品質之現況；以及(2)分析存活者健康照護需求、失志與生活品質間相關性。本研究採橫斷式相關性研究設計，以立意取樣對100位淋巴癌存活者，以結構式問卷進行資料收集，包括基本資料表、癌症存活者未滿足之照護需求簡版中文問卷、中文版失志量表及中文版癌症治療功能性評估表-淋巴癌量表第四版。研究結果顯示健康照護需求由高至低依序為資訊需求、醫療需求、身體心理症狀處理需求及醫病互動需求。失志情況由高至低依序為情緒不安感、失敗感、沮喪感及無意義感。生活品質由高至低依序為生理健全狀況、功能健全狀況、社會/家庭健全狀況及情緒健全狀況。淋巴癌存活者未滿足健康照護需求越高，失志越嚴重；失志越嚴重，生活品質越差；未滿足健康照護需求越高，生活品質越差。此研究結果可建構醫護人員淋巴癌存活者照護需求資訊、生活品質及失志的知識基礎，利於未來規劃照護方針。

關鍵字

淋巴癌存活者；健康照護需求；失志；生活品質

並列摘要

Background: Compared with the five-year survival rate of all cancers of 55.7 % in Taiwan, the five-year survival rate of lymphoma is relatively high as between 55.2 % and 80.5%.. With the higher survival rate patients with lymphoma were greatly impacted by facing the physical and psychosocial distress that caused by their disease and treatment. It impacted not only on their quality of life, but also on the healthcare needs. The purposes of this research are: (1) To investigate the current condition of supportive care needs, demoralization and quality of life of lymphoma survivors; (2)To analyze the relationships among heathcare needs, demoralization and quality of life of lymphoma survivors. Methods: A cross-sectional and corelational study had been designed and 100 lymphoma survivors had been recruited purposely in this reseach. The data was collected by four structured questionnaires, including a basic information; Chinese Cancer Survivor’s Unmet Needs；CaSUN-C; Demoralization Scale-Mandarin Version and Functional Assessment of Cancer Therapy –Lymphoma Questionnaire, Version4. Results: The results revealed : The healthcare needs ranked in sequence from Information, medical care, physical / psychosocial and communication needs; The domains of demoralization ranked from the highest as Dysphoria, followed by Sense of failure, Helplessness and Loss of meaning and purpose.; The domains of quality of life ranked in sequence from emotional well- being, social/family well-being, functional well-being and physical well-being; The higher the unmet supportive care needs of lymphoma survivors were and the worse their demoralization was. The more serious the demoralization was, the worse their quality of life was. Conclusions: The results of this research may provide the health care personnel on constructing the fundamental knowledge of healthcare needs information, quality of life and demoralization for lymphoma survivors. Also may assist the health care personnel on planning the future guidelines for healthcare needs for lymphoma survivors.