癲癇患者疾病知識、自我效能、自我管理及社會支持與生活品質之相關探討

Relationships among knowledge,self efficacy, self management, social support and quality of life in Patients with epileptic

許文宜(Wen-Yi Hsu)

指導教授 ： 高月慈

義守大學/醫學院/醫務管理學系/碩士(2017年)

摘要

台灣衛生福利部將癲癇認定為是一種慢性病，為瞭解及促進癲癇患者的生活品質，因此，本研究主要目的為探討癲癇患者疾病知識、自我效能、自我管理及社會支持對於癲癇病患的生活品質間的相關性。研究採橫斷式相關設計，以結構式問卷進行收集，採方便取樣，針對南部某醫學中心之神經內科門診，年滿20歲以上診斷為癲癇症患者，排除條件為意識不清者及其他診斷之病人，有效樣本為150份。問卷內容包含疾病知識、自我效能、自我管理、社會支持及生活品質，研究方法以階層迴歸模式進行假說檢定。研究結果顯示癲癇患者疾病知識與生活品質具有顯著的正向關係（β＝.50，p<.001）。自我管理在疾病知識與生活品質間具有部分中介效果（β＝.43，p<.001）。依研究結果建議，臨床醫護人員應病患依個別性不同，提供此癲癇患者及其家屬疾病相關知識與訊息，並鼓勵參與病友支持團體，獲得良好的社會支持，增進自我管理行為，進而提升癲癇病患整體生活品質。

關鍵字

癲癇 ； 生活品質 ； 疾病知識 ； 自我效能 ； 自我管理 ； 社會支持

並列摘要

The Taiwan Ministry of Health and Welfare recognized epilepsy as a chronic disease. The purpose of this study was to understand and promote the quality of life in patients with epilepsy. This study was designed to explore the relationship of the quality of life with the knowledge of epilepsy, self-efficacy, self-management, and social support. This is a cross-section study using structured questionnaire. The questionnaire includes knowledge of epilepsy, self-efficacy, self-management, social support, and quality of life. We used hierarchical regression analysis for data interpretation. Patients were enrolled from the neurological outpatient department in a medical center of the southern Taiwan.
Patients aged older than 20 years old with the diagnosis of epilepsy will be included in the study. The questionnaire will be completed by the patient. Patient who have unclear consciousness were excluded. The effective sample size was 150.
Our result showed a significant association between knowledge of epilepsy and the quality of life(β＝.50，p<.001). A moderate associated was observed between self-management with knowledge of epilepsy and quality of life(β＝.43，p<.001).
According to the results of this study, medical staff should be based on individual differences in patients with this epilepsy and their families to provide disease-related knowledge and information. In addition, encourage participation in the epilepsy patients support groups. The better social support they were obtained, will be made to increase self-management and improve quality of life in patients with epilepsy.

並列關鍵字

Epilepsy ； Quality of life ； Knowledge of epilepsy ； Self-efficacy ； Self-management ； Social support

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