失智症患者主要照顧者生命經驗之敘事分析

Narrative Analysis of the Life Experience of Primary Caregivers of Patients with Dementia

王子勻(TZU-YUN WANG)

指導教授 ： 江青桂

中臺科技大學/護理學院/長期照顧碩士學位學程/碩士(2019年)

摘要

老年人口的比例增加及高齡社會的來臨，隨之而來的罹患失智症的人數也逐漸攀升，家人罹患失智症，對主要照顧者是一段艱辛漫長的照顧過程，照顧者經歷身、心及社會的困頓，其照顧的生命經驗值得探究。
本研究旨在了解失智症家屬主要照顧者在照顧家人過程中，所經歷的問題及影響，其調適的方法及心境的轉變等生命經驗，採敘事研究方法，於中部某失智日照中心，以立意取樣方式，選取具備5年以上失智症照顧經驗之家屬主要照顧者，透過一對一、半結構式訪談錄音蒐集研究資料。錄音逐字稿採「整體－內容」內容分析法進行資料分析。共訪談6位家屬照顧者，其中夫妻有3位，子女有2位，婆媳有1位。研究結果呈現三大經驗主題，分別為照顧問題、照顧困境、及照顧因應，6位受訪者各自經驗其個別、獨特的失智症照顧旅程。
依據研究結果，研究者深入詮釋主要照顧者的三大經驗之內涵，內容包括難以承受的身心負荷、失智照顧的倫理兩難、支持與愛減輕照顧者的壓力。本研究深入了解失智症家屬主要照顧者的生命經驗，期許研究結果提供臨床實務或日後相關研究之參考。

關鍵字

生命經驗 ； 主要照顧者 ； 失智症 ； 敘事研究

並列摘要

The proportion of the elderly population has increased and the ageing society of Taiwan has come. The number of people suffering from dementia has gradually increased. Family members suffer from dementia is a long and arduous process for the primary caregivers. The caregiver experiences physical, psychological and social difficulties, the life experience of their care is worth exploring.
The objective of this study is to understand the life experiences of primary family caregivers of patients with dementia, the problems and effects experienced, and the adaptation methods used.A narrative research approach was adopted to describe and explore life experiences of the family caregivers. Purposive sampling was employed to select participants who have more than 5 years of experience in dementia care.The data was collected from one to one and semi-structured interviews and analyzed by the "Holistic-Content" content analysis. A total of 6 family caregivers were interviewed, including 3spouses, 2 children, and 1 daughter-in-law. The results of the study presented three major themes of experience, namely, the problemsencountered, the challenges experienced, and the coping strategies adopted. The six respondents each experienced their individual and unique dementia care journey.
Three courses are discussed from the results of this study, including unbearable physical and psychological loads, ethical dilemmas of dementia care, and support and love to alleviate the pressure of caregivers. This study provides an in-depth understanding of the life experiences of primary family caregivers of patients with dementia.The results of this study provide a good reference for clinical practice and future research.

並列關鍵字

life experience ； primary caregivers ； dementia ； narrative research

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