桃園地區小兒麻痺病患後期合併症之探討

The Study of Post-Polio Syndrome in Tao-Yuan Area

韋有維(Yau-Wai Wai) ； 李偉強(Wai-Keung Lee) ； 許應勃(Ying-Po Hsu) ； 葉采青(Tsai-Ching Yip)

《中華民國復健醫學會雜誌》 29卷3期 (2001/09) Pp. 115-121

摘要

針對桃園地區小兒麻痺病患，以問卷方式進行初步調查，再由回收問卷中，以電話聯絡安排有意願之受檢者，來院接受追蹤檢查，以瞭解其發病過程、居家環境、身體狀況及目前所面臨的問題等。從回收的151份問卷和到院接受追蹤檢查的56位病患中，對桃園地區小兒麻痺病患有初步瞭解，並藉此建立資料庫。從資料分析中，瞭解當時社會對殘障者的影響及在醫療資源缺乏、衛生教育又不普及之情況下，對病患所產生症候之影響。可惜病患因來院不便及工作之故，反應沒有預期熱烈。藉此次活動建立資料庫，以利日後追蹤、探討本土的小兒麻痺病患，因環境（社會、衛生習慣）的不同，是否與其他國家有所差異，並因而了解他們的需求，以利給予適當的醫療保健措施指導，進而提升病患之生活品質。

關鍵字

小兒麻痺 ； 小兒麻痺後期症候群 ； 日常生活,生活品質

並列摘要

This study aims to investigate the disease process, living environment, physical condition, and current problems of the patients with poliomyelitis in Tao-yuan area. Through a total 151 responses and 55 patients coming to the hospital for follow up, a data base was established to determine the impacts of the direct and indirect factors, including social environment, poor medical resources and lack of public health education. Unfortunately, the number of patients who showed up for further check up is unsatisfactory in schedule due to lack of convenient transportation. However, the data collection of this study would be sufficient for long term follow ups and investigations to find out whether poliomyelitis patients in Taiwan differed from patients in other countries by comparing their environments and public health service delivery modes. The data base can also help us to understand patients' needs so that we can draw up appropriate medical health policies and promote patients' quality of life.

並列關鍵字

poliomyelitis ； postpolio syndrome ； activities of daily living ； quality of life