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特殊幼兒之家庭生活品質分析

The Analyses of Family Quality of Life of Families with Young Children with Special Needs

摘要


家庭的重要性使得家庭逐漸成為早期療育服務的核心,以家庭為中心遂成為早期療育的服務模式。在這種服務模式下,家庭生活品質的概念影響了整個服務遞送的規劃,也是反應早期療育服務成效的最好指標。因此,本研究的主要目的在於,評估及了解特殊幼兒的家庭生活品質,及分析家庭生活品質的影響因素。本研究使用社會調查法,對397位特殊幼兒的家庭進行資料蒐集。經過因素分析後,家庭生活品質浮現出三個範疇,為家庭互動與心理福祉、家庭產能與家庭居住環境。經由多變量變異數分析,結果發現特殊幼兒的健康情況、母親教育程度、家庭社經地位、家庭月收入、家庭收支狀況,及有否接受個管中心服務等變項,是影響家庭生活品質的顯著變項。

並列摘要


The family plays a crucial role in the development of young children with special needs. The family conditions and parents' capabilities determine the effectiveness of early intervention services. Reflecting the importance of family, early intervention is considered as an array of family-centered services, and is evaluated based on the concept of family quality of life. Thus, the main purposes of this study were to explore the structures of family quality of life of families with young children with special needs in Taiwan, and to investigate the significant variables influencing family quality of life. Survey was used for data collection. A total of 397 families of young children with special needs participated in the study. After factor analysis, three domains were identified as family interaction and psychological well-being, family productivity, and family living environment. Health condition of the special children, educational level of mothers, family social-economic status, family income level, family financial status, and receiving case management services significantly influenced family quality of life. Conclusion was made with recommendations to improve early intervention services.

參考文獻


唐紀絮(2005)。特殊幼兒家庭生活品質測量工具之發展-台灣經驗。身心障礙研究。3(1),33-53。
Abidin, R. R.(1995).Parenting Stress Index: Professional Manual.Odessa, FL:Psychological Assessment Resources, Inc.
Acs, g.,M. Gallagher(2000).Income Inequality among America`s Children. New Federalism: National Survey of America`s Families.Washington, D.C.:The Urban Institute.
Aznar, A. S.,D. G. Castanon(2005).Quality of Life from the Point of View of Latin American Families: A Participative Research Study.Journal of Intellectual Disability Research.49(10),784-788.
Bailey, D. B.(1998).Family Outcomes in Early Intervention: A Framework for Program Evaluation and Efficacy Research.Exceptional Children.64,313-328.

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曾凡慈(2010)。兒童發展的風險治理:發展遲緩、監管網絡與親職政治〔博士論文,國立臺灣大學〕。華藝線上圖書館。https://doi.org/10.6342/NTU.2010.03100
王思淳(2012)。發展遲緩兒童家長的社會支持、充權與生活品質之相關研究:以臺北市及新北市接受早期療育服務之家長為例〔碩士論文,國立臺灣師範大學〕。華藝線上圖書館。https://www.airitilibrary.com/Article/Detail?DocID=U0021-1610201315313650
馬薇茹(2017)。學前特殊幼兒家長參與及其滿意度之研究─以特殊教育長期追蹤資料庫為例〔碩士論文,國立清華大學〕。華藝線上圖書館。https://www.airitilibrary.com/Article/Detail?DocID=U0016-0401201816055132

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