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脊髓損傷者主體性知識的探究:一個以「排便問題」進行協同探究的實例

The Perspective of Spinal Cord Injury Survivors: A Collaborative Inquiry on Bowel Inertia

摘要


脊髓損傷者生活重建的過程中有許多有苦難言之處,本文是作者與桃園縣脊髓損傷潛能發展中心的6位脊髓損傷者以協同探究的方式,針對其中的排便問題所進行的行動研究。透過不斷地省思及對行動的反映,發展出四個階段的協同探究歷程,把過去對排便問題去脈絡化的認識與理解,還原其生活中的面貌,並整理成可溝通與對話的文字。最後,從彼此的對話與反思中,進而辨識了醫療機構與脊髓損傷潛能發展中心兩個不同的組織系統, 所發展出來的態度與知識的差異。透過協同探究的歷程,不但確立以傷友為主體的脊髓損傷團體之知識發展的重要性,也使得作者與該團體的協作關係更為紮實。

並列摘要


The recovery process of a spinal cord injury survivor encompasses many unspoken difficulties. This study adopted an action research approach, and explored the difficulties associated with bowel inertia of 6 spinal cord injury survivors at Taoyuan County Potential Development Center for Spinal Cord Sufferers. Through a collaborative inquiry process, the bowel inertia of spinal cord injury survivors was de-contextualized; it was brought back to its original state as it appeared in life, and was reorganized through writing to be communicated with others. In addition, the differences between the medical system and the Potential Development Center for Spinal Cord Sufferers are discussed. The collaborative inquiry process helped the author maintain a firm collaborative relationship with the spinal cord injury survivor group, and demonstrated the importance of an independent development of knowledge in spinal cord injury support groups.

參考文獻


王顏和(2012):〈什麼是脊髓損傷?〉。線上檢索於2012年3月2日,取自:http://www.scsrc.org.tw/art.php?no=31
桃園縣脊髓損傷潛能發展中心(2012):〈中心簡介〉。線上檢索於2012年3月21日,取自:http://www.scsrc.org.tw
Baebour, A.、潘咸廷編譯、陳建州編譯、陳三能編譯(2002)。醫病關係。新北:藝軒圖書。
Schön, D. A.、夏林清譯(2004)。反映的實踐者─專業工作者如何在行動中思考。台北:遠流。
胡幼慧(2001)。新醫療社會學:批判與另類的新視角。台北:心理。

被引用紀錄


鄭雅之(2014)。當不標準的病人遇到醫療專家-障礙者醫用關係的社會學分析〔碩士論文,國立臺北大學〕。華藝線上圖書館。https://www.airitilibrary.com/Article/Detail?DocID=U0023-1002201416353600

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