Ethical Issues of Psychological Research in the Context of End-of-life

生命末期心理研究之倫理議題

范聖育(Sheng-Yu Fan) ； 胡文郁(Wen-Yu Hu) ； 邱泰源(Tai-Yuan Chiu)

《安寧療護雜誌》 13卷4期 (2008/11) Pp. 471-483

https://doi.org/10.6537/TJHPC.2008.13(4).7

摘要

安寧緩和醫療照護模式能提供癌末病人及家屬全面性的照顧，而日益增加的心理社會研究將有助於瞭解他們在癌症旅程中的心理反應與調適。對於生命威脅疾病的病人及家屬爲焦點的研究，也常會面臨許多倫理議題的挑戰，而這些倫理考量應該在研究過程中被予以強調和重視，以保護受試者的安全與利益。本篇文章將簡述基本的研究倫理原則，以及生命末期心理研究可能遭遇的研究倫理議題，包括：(1)易受傷害的受試者；(2)知情後同意；(3)研究結果之利弊衡量；(4)受試者之隱私與保密等。研究者在進行研究之初，最好能先確認上述潛在研究倫理議題後，再進一步執行並考量研究結果於臨床實務之應用。

關鍵字

倫理 ； 心理研究 ； 生命末期

並列摘要

The hospice palliative care model provides a comprehensive perspective to care terminal cancer patients and their families, and there are increasing psychological-social research to understand psychological responses and adjustment in the cancer journey. However, research that focus on patients and families with life-threatening diseases involve numerous ethical challenges. Ethical considerations should be addressed in the research process to protect the safety and benefit of the participant. This paper discussed basic ethical principles and ethical issues that investigators have to consider when conducting psychological research in the context of end of life. These include: (1) vulnerable participants; (2) informed consent; (3) benefits and cost; (4) confidentiality. While potential ethical considerations were identified, further evaluations and implications were also discussed.

並列關鍵字

ethics ； psychological research ； end-of-life