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外傷病患主要照顧者的疾病意象、壓力與生活品質之探討

Illness Representations, Stress, and Quality of Life in Primary Caregivers of Individuals with Injuries

摘要


背景:外傷醫療成本攀升引起全球關注,外傷後對病患造成身、心、家庭與社會等問題逐漸被重視。外傷主要照顧者與病患多處於具生產力階段,外傷後對家庭角色與功能影響大。研究甚少探討外傷對主要照顧者的影響,其健康問題可能被低估需深入探討。目的:探討外傷主要照顧者的疾病意象、壓力感受與生活品質,及其生活品質的預測因子。方法:採橫斷式研究設計,於台灣南部兩家醫院收案,共收集150位外傷主要照顧者。以結構式問卷收案,問卷包含主要照顧者與病患基本資料表、外傷疾病意象量表、壓力感受量表與台灣簡明版世界衛生組織生活品質量表。以SPSS 20.0版套裝軟體進行資料分析。結果:研究結果顯示,主要照顧者對外傷的認知為:「疾病確認多」、「恢復時間長」、「後遺症嚴重」及「情緒意象負面」。主要照顧者壓力感受程度高,生活品質為中等以下,且比其他疾病的主要照顧者更差。「情緒意象」、「外傷可控制性」、「恢復時間週期性」與「壓力感受」為預測所有範疇生活品質的重要因子,而「外傷後遺症」則可預測心理及環境範疇之生活品質。結論/實務應用:主要照顧者對外傷負面認知多、壓力大與生活品質不佳,出院前應詳細評估家庭與社會資源,與對後續照顧的認知。對主要照顧者的長期追蹤研究,亦有利於因應外傷後所面臨的各種問題與提升其照顧能力。

並列摘要


Background: Decreasing mortality from injuries has led to a rise in associated long‐term health expenditures. Although survivors of injured individuals with long‐term disabilities have been studied, the care‐related problems of their primary caregiver have not been adequately addressed. Purpose: This study explores the stress, illness representations, quality of life, and predictors of quality of life in the primary caregivers of patients with injuries. Methods: A cross‐sectional design was applied. Data were collected at two hospitals in southern Taiwan. A total of 150 caregivers of injured patients were enrolled as participants. A demographic datasheet for both the caregivers and their care recipient, the Chinese Illness Perception Questionnaire Revised‐Trauma, the Caregiver Stress Scale, and the World Health Organization Quality of Life-BREF were used to collect data. Data were analyzed using SPSS 20.0. Results: Findings show that the caregiver participants perceived higher identity, timeline, consequences and emotional representations, indicating they have more negative feelings toward the injury. This study showed that they have a higher level stress and lower quality of life than caregivers attending to patients in other care‐need categories. The significant predictors of overall quality of life include: emotional representations, controllability, timeline cyclical, and stress. The consequences predict some domains of quality of life. Conclusions/Implications for Practice: The results indicate that caregivers of injured individuals face high levels stress, a low quality of life, and negative illness representations. To improve medical care, professionals should properly assess the associated resources of patients and caregivers as well as their discharge preparations. In terms of future research, longitudinal studies on caregivers of injured patients may be beneficial to provide better nursing care.

被引用紀錄


徐雯娟、林瑞香、林梅香、徐秀琹、石惠美(2019)。肝硬化病人主要照顧者之生活品質及其相關因素護理雜誌66(1),60-69。https://doi.org/10.6224%2fJN.201902_66(1).08
FANN, W. C., HUNG, C. C., CHABOYER, W., & LEE, B. O. (2021). Effectiveness of a Nurse-Delivered Intervention on Illness Perceptions and Quality of Life in Patients With Injury. The Journal of Nursing Research, 29(4), 1-10. https://doi.org/10.1097%2fjnr.0000000000000439

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