- 學位論文
家屬照顧者陪伴失智症患者門診就醫之生活經驗
The Live Experience of Caregive Accompanying Person with Dementia to Clinic Visit
摘要
台灣地區人口組成近幾年迅速改變，65歲以上老年人口增加比例最為明顯。失智症是老人常見疾病，老年人口增加，使得失智患者的健康照護需求顯得迫切需要。然而，醫療環境之吵雜、門診就醫路線及流程複雜、醫護人員對失智症患者的行為認識不夠，可能對家屬協助失智症患者門診就醫時產生影響，這些經驗在文獻中很少被描述。因此，本研究採質性研究深入訪談方法，來探討失智患者之主要家屬照顧者陪伴就醫之生活經驗。使用立意取樣（purposive sampling），邀請16位失智症家屬照顧者（M=50歲）參與本研究。本研究並以臨床失智量表（Clinical Dementia Rating）及躁動行為量表（Brief Agitation Rating Scale）來收集失智患者的日常生活與認知功能和問題行為。研究結果歸納出六個生活經驗，包括：（1）摸索出陪同就醫的工作方式，（2）令人措手不及與困窘，（3）漫長、枯燥與不安的等待，（4）就醫環境的不友善，（5）診療之時效性不足，（6）缺少失智專科化醫療照護。研究結果有助於瞭解照顧者陪伴失智患者就醫的生活經驗及困難。醫護人員可以參考研究結果，提供失智症家屬就醫需要的協助，例如專科化門診、獨立失智門診區、男女合用的廁所等，以提升失智症患者及家屬的醫療照護品質。
並列摘要
The population composition in Taiwan changes rapidly in recent years. The most obviously change is the increase of the elderly population. Dementia is a common disease in older persons. The increase of the elderly population makes health care for older persons with dementia becoming important and urgent. However, noises in hospitals, complicated routes and clinic visit process, lack of dementia knowledge in medical staff may make family caregivers encountering problems while accompanying the persons with dementia to clinic visit. The problem are little described in the existed literature. Therefore, qualitative research with in-depth interview was used to explore the experience of family caregivers accompanying the persons with dementia to clinic visit. Sixteen family caregivers (M = 58 years old) participated in the study by purposive sampling. Clinic Dementia Rating and Brief Agitation Rating Scale were used to collect activities of daily living, cognitive function, and problem behaviors of the persons with dementia. The result of the study revealed 6 lived experience: (1)Groping accompany methods for clinic visit, (2)Embarrasment, (3)Endless, boring, and restless waiting, (4)Unfriendly medical environment, (5)Untimely medical treatment, and (6)Lack of specialized dementia medical care. The findings of the study may assist health professionals to better understand clinic visit experience and problems for the persons with dementia and their families. Health professionals could provide necessary assists, for example, specialized dementia clinic, isolated dementia outpatient department, and male-female common restrooms, to facilitate clinic visit process and to enhance quality of medical care.
參考文獻
延伸閱讀
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