胰島素依賴型糖尿病童的福利需求與相關因素之研究

本研究採量性研究法，由中華民國糖泳病學會「臺北市IDDM登錄小組」及康泰塞金會IDDM聯誼會之會員中，國小四年級到高中三年級之病患的母親為研究對象共計62位，運用結構問卷之方法收集資料，以探討家庭壓力、家庭功能、糖尿病控制與福利需求的關係。研究發現對IDDM病童的家庭而言，感到最需要的前去項福利需求依序為：「希望社會大衆能接納我的糖尿病小孩」、「糖尿病衛教中心的設置」、「心理諮商中心的設立」、「納入殘障福利法」、「加強學校老師、護士對胰烏素依賴型糖床病的認識」、「舉辦糖床病座談會」。整體自我照顧執行情形、生理健康照顧功能與醫療知識、技術與諮詢方面的需求成正相關；整體家庭壓力、生活型態改變的壓力與整體福利需求、經濟補助方面的需求成正相關；糖化血色素與學校生活適應方面的需求成負相關。同時，母親的教育程度、生活形態改變的壓力、母親的職業、家庭的情感功能、參加病友團體的情形等變項對整體福利需求具有47.7%的預測力。

關鍵字

家庭壓力；家庭功能；糖尿病控制；福利需求

並列摘要

The purpose of this quantitative study was to understand the welfare needs and the influencing variables. The variables in this study involved personal characteristics, family characteristics, family stress and family function. Sixty-two subjects, ranging from the fourth grade of primary school to the third year of senior high school, were recruited from the enrollment list of the Taipei IDDM (Insulin-Dependent Diabetes Mellitus) Registry and from the list of the Kang-Tai IDDM Association. Structural questionnaire was used to gather research data from subjects' mothers. The top six perceived welfare needs of these families were: society acceptance, a diabetes center, a psychological counseling center, being included in the handicapped welfare law, enhancing teachers and school nurses knowledge of IDDM and a symposium on diabetes. Whole self-management, physical care function were positively correlated with the needs of medical knowledge technology and counseling. Whole family stress, life change stress were positively correlated with the whole welfare needs and economics aid needs. HbA1c and the need for school adaptation, howere, were negatively correlated. The mother's level of education, life-change stress, working status, family's affection function and the patient group explained 47.7% of the variance of the perceived welfare needs.

並列關鍵字

Family Stress ； Family Function ； Diabetes Control ； Welfare Needs

國際替代計量

胰島素依賴型糖尿病童的福利需求與相關因素之研究

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