慢性病病患家庭照顧者支持系統之研究

The Support System for Family Caregivers of Chronically Ill Patients

邱啟潤(Chii-Jun Chiou) ； 陳武宗(Wu-Tsung Chen) ； 陳宜品(I-Pin Chen)

《長期照護雜誌》 9卷3期 (2005/09) Pp. 245-262

https://doi.org/10.6317/LTC.200509_9(3).0005

摘要

本研究旨在探討接受居家照護服務之慢性病患的家庭照顧者利用支持系統的情形。支持系統來源包括正式與非正式，種類有實質性、情緒性及資訊性三項。資料收集以高高屏地區與健保局有合約之46家居家照護機構所收案的居家照護個案為母群體，隨機抽樣後能配合協助的共有16家588案，經訪視完成有效問卷388份，完成率為66%。經統計分析顯示，照顧者利用非正式支持系統的比率皆高於正式系統。可用的正式資訊性支持有16項，實際利用的平均值為8.7項(SD=4.8)。可用的正式實質性支持有20項，實際利用的平均值為6.9項(SD=1.4)。可用的正式情緒性支持有4項，實際利用的平均值為0.8項(SD=0.9)。對於各項利用過的支持，除了實質性支持中的經費補助申請手續較感繁複外，滿意度皆高達八成以上。故本研究建議未來家庭照顧者的社區照顧支持網絡的建構，在政策與實務上，應以有效結合正式支持系統，維持與加強現有非正式支持系統，並針對期望獲得的支持為努力目標。

關鍵字

慢性病病患 ； 家庭照顧者 ； 支持系統

並列摘要

The purpose of this research was to examine the support system used by family caregivers of relatives, who were receiving home care services in southern Taiwan. Support system was conceptualized as formal and informal services, and they included instrumental, emotional and informational assistance with caregiving or related tasks. In this research, a random sample of 16 institutions, 588 family caregivers were recruited. A total of 388 family caregivers were interviewed, accounting for 66% of the responding rate. Data after the analyses showed the utilization of informal services is higher than formal services among the caregivers. There were 16 items available in formal informational assistance, and the utilization had a mean item of 8.7(SD=4.8). There were 20 items available in formal instrumental assistance, and the utilization had a mean item of 6.9 (SD=l.4). There were 4 items available in formal emotional assistance, and the utilization had a mean item of 0.8 (SD=0.9). Although the application process of instrumental assistance was found complicate, the satisfactory rate among all formal assistance was more than 80%. The study suggests that in order to provide community care network to family caregivers in the future, there should be a link up between both formal and informal services, politically and practically.

並列關鍵字

chronically ill patients ； family caregiver ； support system