台灣的道德先鋒：焦慮、產檢選擇與責任的矛盾

施麗雯

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P77 - 134

Humanities > General
Health & Medical Care > General
Health & Medical Care > Medical Sciences
Health & Medical Care > Basic Medical Science
Health & Medical Care > Health Promotion & Hygiene
Health & Medical Care > Social Medicine
Social Sciences > General

DOI： 10.6464/TJSSTM

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台灣的道德先鋒：焦慮、產檢選擇與責任的矛盾

Taiwanese Moral Pioneers: The Paradox of Choice, Anxiety and Responsibility

施麗雯(Li-Wen Shih)

科技醫療與社會； 21期 (2015 / 10 / 01) ， P77 - 134

繁體中文

道德先鋒；產前篩檢與檢測；優生；本體編舞； moral pioneers ； prenatal screening and testing ； you sheng ； anxiety ； responsibility ； ontological choreography

Abstract │ Reference (55) │ Times Cited (3) │ Altmetrics

Abstract 〈TOP〉

Parallel Abstract 〈TOP〉

This paper aims to explore women's experience of prenatal screening and testing (PST), and also how these experiences affect women's pregnancy and decision-making. According to an official survey, 97.21% of Taiwanese pregnant women underwent PST in 2008 (Department of Health, Executive Yuan, 2009: 49). From conducting ethnographic observations, interviews with pregnant women and couples, and collecting participants' drawings about what PST is, I found that my participants experienced much anxiety during their pregnancy. I explain this in the context of routine medical practices that construct women as responsible decision‐making subjects, which thus stirs their anxiety by invoking the spectre of a disabled child or of aborting a desired child. As American feminist Rayna Rapp suggests, this positions women as 'moral pioneers' who stand at the moral frontier of our society to decide what kind of children can enter society. Following Rapp's 'moral pioneer,' I use the term 'Taiwanese moral pioneer' to suggest that in Taiwan women's decision-makingare entangled with health care policy, the concept of you sheng (superior birth), medical practices, medical professionals, and these women's families. I see these as material-semiotic actors participating in an ＂ontological choreography＂, which is a term coined by Charis Thompson and describes the heterogeneous practices within medical practices. To examine these choreographic enactments, this paper provides accounts of how PST is practiced, and also of its ontological enacting. In the end, the paper contributes to our understanding of the complexity of PST and also its paradox, which is enfolded within Taiwanese women’s anxiety, responsibility and decision-making together.

Reference ( 55 ) 〈TOP〉

吳嘉苓(2003)。受污名的性別、性別化的污名：從台灣『不孕』男女處境分析污名的性別政治。台灣社會學刊，29，127-179。
連結：
吳嘉苓(2011)。編排風險：多胚胎孕育的多重社會技術網絡。台灣社會學，22，111-156。
連結：
陳東升(2006)。審議民主的限制：台灣公民會議的經驗。臺灣民主季刊，3(1)，77-104。
連結：
NHS (2015). Screening for Down's, Edwards' and Patau's syndromes. http://www.nhs.uk/conditions/pregnancy-andbaby/pages/screening-amniocentesis-downs-syndrome.aspx#close （檢索日期：2015 年02 月22 日）
台北市政府衛生局（2015），〈台北市政府的助你好孕（孕婦唐氏症篩檢須知）〉。http://www.health.gov.tw/Default.aspx?tabid=626（檢索日期：2015 年2 月17 日）

Times Cited ( 3 ) 〈TOP〉

Altmetrics

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