癌症兒童主要照顧者的不確定感及其相關因素之探討

The Uncertainty and its Related Factors of the Caregiver with Cancer Children

陳靜慧(Ching-Hui Chen)

指導教授 ： 邱啟潤

高雄醫學大學/護理學院/護理學系研究所/碩士(2006年)

摘要

本研究採結構式問卷進行調查，以北、高兩家醫學中心癌童主要照顧者為研究對象，共收案128位。目的在於1.瞭解癌童主要照顧者的不確定感現況。2.探討癌童及癌童主要照顧者的基本屬性與其不確定感的相關。3.探討癌童主要照顧者不確定感的重要預測因子。研究工具為三份結構式問卷，包含基本資料、雙親不確定感量表及社會支持量表，皆具有良好信度及效度。
主要研究結果如下：
1.癌童主要照顧者的「整體不確定感」標準化得分為54.27，四個層
面依序以「模糊性」不確定感最大，得分為57.76；其次是「缺乏訊
息」，得分為55.10；再者是「不明確性」，得分為53.38；最小是「不
可預知性」，得分為46.30。
2.癌童主要照顧者的社會支持中，三個層面依序以需要性最大，實際
獲得程度居中，足夠性最低。
3.癌童「罹患疾病」、「治療階段」在不確定感得分上有顯著差異。
癌童「因此病住加護病房的次數」及癌童主要照顧者「訊息性社會
支持的需要程度」與其不確定感有顯著正相關。癌童主要照顧者「工
具性社會支持的足夠程度」、「情感性社會支持的足夠程度」及「整
體社會支持的足夠程度」與主要照顧者的不確定感有顯著負相關。
4.癌童主要照顧者不確定感之重要預測因子依序為「訊息性社會支持
的需要程度」、「癌童治療階段」、「因此病住過加護病房的次數」及
「整體社會支持的足夠程度」，共可解釋總變異數的23.3%。
本研究建議，護理人員應注意「訊息性社會支持的需要程度」與
「整體社會支持的足夠程度」對不確定感的影響，提供可以減輕癌童
主要照顧者不確定感有效的護理措施。

關鍵字

社會支持 ； 癌症兒童 ； 不確定感 ； 主要照顧者

並列摘要

The study used a descriptive correlation and cross-sectional design, with interviews and structured questionnaires used for data collection. In this study, 128 caregivers with cancer children from two medical centers in Taipei and Kaohsiung were collected. The purposes of this study are to 1. understand the uncertainty of the caregiver with cancer children. 2. investigate the relationship between the uncertainty and various factors of the cancer children and the caregiver with cancer children. 3. investigate the various important factors affecting the uncertainty of the caregiver with cancer children. Three structured questionnaires included demographic variables, Parent’s Perception Uncertainty in illness Scale (PPUS), and Social Support Inventory. The Parent’s Perception Uncertainty in illness Scale (PPUS), and Social Support Inventory have reliability and validity.
Major findings were as the followings:
1.The standardized score of uncertainty was 54.27. Four levels were as the
followings. The first one is “Ambiguity” which had the highest score
57.76. The next one was “Lack of Information” whose score was 55.10.
The third one was the “Lack of Clarity” whose score was 53.38, and finally
the “Unpredictability” had the lowest score 46.30.
2.Among the social support of the caregiver with cancer children, there were
three levels: the highest level was the “need”, and the next one was the
“Actual Acquirement”. The lowest level was the “sufficiency”.
3.Uncertainty was related to disease and treating stage. Uncertainty was
significantly positive correlated with “the numbers of transferring to
Intensive Care Unit”, and “the level of need with informational support”.
Uncertainty was also significantly negative correlated with “the level of
sufficiency with instrumental support”, “the level of sufficiency with
emotional support”, and “the sufficiency of social support”.
4. The significantly predictors of uncertainty among the caregiver with cancer
children were the level of need with informational support, treating stage,
the numbers of transferring to Intensive Care Unit, and the sufficiency of
social support which explained 23.3% of total amount of variance.
The results of this study provide information to better understand uncertainty for the caregiver with cancer children. The findings suggest that nurses should pay more attention to the significantly influences of “the level of need with informational support” and “the level of sufficiency of social support” on uncertainty. Furthermore, future studies can use these consequences as guidelines in order to develop effective interventions and lighten the uncertainty of the caregiver with cancer children.

並列關鍵字

social support ； caregiver ； uncertainty ； cancer children

參考文獻

中文文獻

文馨書局( 2004 ). 文馨最新英漢辭典•台北：文馨。

中華民國兒童癌症基金會( 2002，3月26日) •歷年病童人數統計圖•2006年1月8日取自

http://ccf.wingnet.com.tw/table.htm

白瑞生( 2000 ) •兒童癌症存活者的生活議題•護理雜誌，47( 4 )，17-21。