本研究的目的在探討脊髓損傷病患家屬,出院過渡期角色緊張及需求的變化及相關影響因素。採用多元化研究方法,同時以量表到量及深度訪談,共回收問卷34份及訪談10位個案。研究結果希望提供醫院及社區護理人員瞭解家屬的緊張來源及需求,以協助家屬發展因應策略。家屬角色緊張為自覺照顧困難的主觀感受,其來源有直接照護、擔心、缺乏資源、經濟負擔、角色衝突、關係張力、照顧期望、被控制感、概括性緊張。角色緊張最大來源為直接照護之內容,出院後分數比出院前高,達統計上顯著差異,其餘項目出院前後皆未達統計上差異;出院後家屬需求平均分數高於出院前,未達統計上顯著差異。出院後完全損傷病患角色緊張高於不完全損傷病患,女性家屬角色緊張的程度上大於男性,子女的角色緊張平均分數比配偶高,達統計上顯著差異。
The purposes of this study were to explore multiple domains of the caregiver's role strain and demands, and identity the factors that affected those for spinal cord injury patients' discharge during the transition period. This study was conducted using a triangulation methodology. Thirty-four family caregivers were investigated by questionnaire and 10 were interviewed with audio-tape recording using a semi-structured interview guide. The findings were as follows: Role strain was categorized as deriving from nine sources: direct care; worry; lack of resources; economic burden; role conflict; role expectations; feelings of being manipulated; increased tension/care receiver relationship; and global strain. Direct care was the greatest source of role strain. pre discharge scores were higher than after discharge. The other sources were not significance. The role strain of the patients with complete injury was higher than those of the patients with incomplete injury. The level of role strain in females was higher than in males. The level of role strain in patients’ children was higher than in spouses.