母親面對惡性腦瘤病童接受癌症療程的經驗

本研究目的爲了解母親對病童罹患惡性腦瘤的主觀經驗，及母親對性腦漿病童接受癌症療程的照顧經驗。故以現象學研究法(phenomenology)自某醫學中心作立意取樣，共計12位個案參與本研究，依照半結構式訪談指引進行錄音訪談後，採Giorgi現象學研究法進行資料分析，研究結果針對十二份訪談內容歸類出六個現象主題：(1)尋解腦瘤疑惑；(2)預期失落孩子；(3)獨當母性角色；(4)穩定自我心像；(5)加深母子親情；(6)維系孩子希望。本研究結果顯示，病童的惡性腦瘤診斷與所接受的癌症療程對病童母親有莫大衝擊。雖然惡性腦瘤病童母親獨自承擔照顧孩子的辛苦與壓力，但是她們若有健全的支持系統則較能穩定自己全力以赴地照顧病童。於是日後護理人員能藉由加強惡性腦瘤病童母親的支持系統，協助其適當地宣泄壓力，防範治療以病童的傷害，使惡性腦瘤病童母親堅強陪伴孩子走完人生最後的路程。

關鍵字

惡性腦瘤病童；療程；病童母親的角色；現象學研究

並列摘要

This was a phenomenological study. The purpose of this study was to examine and describe the subjective experiences of 12 mothers who had children with malignant brain tumor, using Giorgi’s method. Each participant received an in-depth interview with a semi-structured interview guide. Total of 12 interview data was analyzed and generated into six phenomenological themes: seeking information about brain tumor, anticipating the loss of her child, enacting maternal role alone, stabilizing self-image, strengthening mother-child bond, maintaining the child’s hope. The findings showed that the diagnosis and treatment of brain tumor made a tremendous impact on these mothers. They took care of their children in a highly stressful situation. The more support these mothers got, the better coping ability they had. The findings showed that the pediatric oncology nurses could help these mothers by strengthening the support system, reducing stress, and preventing the side effects of treatment.