- 期刊
家長於兒童復健服務過程中以家庭為中心感受之初探
Exploration of Parental and Therapists' Perceptions for the Family-centeredness of Pediatric Rehabilitation Services
摘要
研究背景與目的：發展障礙兒童的復健治療重視以家庭為中心的服務，但在實務上面臨挑戰，也缺乏在實務執行上的實證。本研究目的是評量家長對於發展障礙兒童接受復健服務過程符合以家庭為中心程度的感受，並探討家長的感受是否受到兒童年齡層、障礙類別及障礙嚴重度的影響。研究方法：受訪者為100位在醫療院所接受復健治療之2至12歲發展障礙兒童(平均年齡4.6歲，標準差1.8歲)之家長。由訪員與家長進行結構式訪談，使用照護過程評量表-20題版(MPOC-20)評量家長感受復健過程中符合以家庭為中心的程度(1=完全沒有，7=極大的程度)。以描述性統計呈現MPOC-20之分數，並使用ANOVA比較不同兒童年齡層、障礙類別及障礙嚴重度在MPOC-20分數的差異。結果：家長在MPOC-20各領域分數介於3.73至5.13之間，表示感受以家庭為中心的程度為輕微至稍大。家長在「尊重和支持性的照護」評分最高(M=5.13)，「提供一般資訊」評分最低(M=3.73)。MPOC-20分數未受到兒童年齡、障礙類別及障礙嚴重度影響(p＞.01)。結論：此結果代表家長感受復健過程大致符合以家庭為中心，其感受不受兒童的年齡、障礙類別及程度所影響。家長對於得到尊重和支持的滿意度最高，認為最為不足的是提供一般資訊。兒童復健相關專業人員宜體察個別家庭需求，提供符合所需的身心障礙相關資訊及社區資源。
並列摘要
Background and purposes: Family-centered service (FCS) has been considered as relevant in pediatric rehabilitation to children with developmental disabilities. Given that there are many challenges in practice and a lack of evidence regarding its implementation in Taiwan, the study aimed to investigate that to what extent FCS was being practiced from parents' perceptions. Methods: This study includes a total of 100 parents/caregivers whose child had a primary condition associated with developmental disabilities and aged from 2 to 12 years (Mean age=4.6 years, SD=1.8 years). Children received rehabilitation services in clinic settings. The Measure of Processes of Care-20 (MPOC-20) was used to evaluate parental perception in the rehabilitation process. Each item is rated on a 7-point Likert rating scale (1 = not at all, 7 = to a very great extent) to indicate the extent to which FCS were being perceived. Parents completed the MPOC-20 through structured interview. Descriptive statistics were used to present scores for the MPOC-20. ANOVAs were used to compare differences in scores for the MPOC-20 by age group, type of disability and level of disability severity. Results: Scores for MPOC-20 ranged from 3.73 to 5.13, indicating FCS being perceived from a small to a fairly great extent. Parents' perceptions of FCS provision were the highest for the 'Respectful and Supportive Care' domain (Mean=5.13) and the lowest for 'Providing General Information' domain (Mean=3.73). No significant differences in the MPOC-20 scores were identified based on child's age, disability type and level of severity (p＞.01). Conclusion: Our results indicatedpositive perceptions for the FCS by parents and therapists, and parents' perceptions were not related to child's age and disability. Parents were most satisfied with being respected and supported, and considered providing general information as an area of improvement. There is a need to further address the demand for providing information about childhood disability and community resources that meets family needs for their children.