一位格林－巴瑞症候群青少女之護理經驗

The Nursing Experience of Caring for a Teenage Girl with Guillain-Barré Syndrome

許雅紋(Ya-Wen Hsu) ； 伍碧琦(Pi-Chi Wu) ； 吳曉芸(Shiau-Yu Wu)

《志為護理-慈濟護理雜誌》 14卷2期 (2015/04) Pp. 98-108

摘要

本文描述一位17歲青少女罹患格林－巴瑞症候群之護理經驗。2012年5月20日至2012年6月1日護理期間，運用Gordon十一項健康功能評估為工具，透過直接護理、會談及病歷查閱等方式進行資料收集，發現個案因神經功能喪失，面對陌生的疾病產生焦慮與害怕，確立其有缺乏疾病相關知識、身體活動功能障礙、無力感等健康問題。整合團隊及多媒體資源說明疾病的進展，提升對疾病與治療的認知；鼓勵個案與家屬參與治療過程，協同復健活動來增加對身體的控制感，透過參與式照護強化家人情感脈絡，增強個案的信心與希望，幫助其重新面對罹病後不同的自我。藉此經驗分享面對格林－巴瑞症候群的年輕患者，除了滿足疾病威脅造成的生理不適外，更需重視治療過程的情緒低潮。

關鍵字

格林－巴瑞症候群 ； 身體活動功能障礙 ； 護理經驗

並列摘要

This article describes the nursing experience of a 17-year-old girl with Guillain-Barré Syndrome. The disease causes weakness in upper and lower extremities, and triggers a series of physical and mental imbalances. Information was collected via physical examination, observation, interviews, direct nursing, and chart review from May 20th to June 1st, 2012. Gordon 11 Function Health Patterns for complete evaluation was used. Problems identified included lack of knowledge about disease, impaired physical mobility and feelings of powerlessness. With teamwork and the use of multimedia assistance regarding the progression of the disease, and to enhance awareness and self-care ability, the patient was able to alleviate physical discomfort and increase the sense of control through rehabilitation. The patient was encouraged to ask questions in order to understand their feelings and guide positive thinking. Family network support was used to rebuild her confidence. This nursing experience of younger patients with Guillain-Barré Syndrome can assist in the recovery process, increase a sense of control and alleviate depression.

並列關鍵字

Guillain-Barré Syndrome, nursing experience, rehabilitation training