一位愛滋病女性併癌末惡病質面臨死亡之照護經驗

本文為一位愛滋感染併發肝癌末期轉移之外籍配偶，面對死亡之照護經驗，照護期間2018／12／12－2019／01／31，藉由觀察、會談及身體評估、團隊討論與查閱病歷等方式收集資料，利用生、心、社會及靈性等進行整體性評估，確立健康問題為營養少於身體所需、慢性疼痛及死亡焦慮。長期建立友好醫護關係，運用安寧療護四全照護理念，結合愛滋及安寧照護團隊等跨專業人員，在生命餘程給予個別性護理措施，如：與營養師討論個案喜好食物種類，團隊及志工的陪伴，生命回顧法化解與案女不睦關係，讓個案離世時能放心託孤，案女也道出感恩與感謝，達到死者無憾生者無愧。

關鍵字

愛滋病；癌末；惡病質；安寧療護；生命回顧

並列摘要

We share the hospice care experience of caring for a foreign spouse with AIDS related terminal Hepatocellular Carcinoma cancer induced cachexia. Data was collected from 12th December, 2018 to 31st January, 2019, through observation, interviews, physical examination, group discussions and reviewing of medical charts. Several aspects were evaluated, including the patient's physical, psychological, and spiritual health, as well as social relations, to conclude the major health problems to be insufficient nutrition, chronic pain and death anxiety. Individualized care was provided by establishing a long-term trusting relationship with the patient and her family, forming a multidisciplinary care team of AIDS specialists and Hospice crew, and using four core values of hospice care. Additionally, discussions with the dietitian and family members established the type of food preferred by the patient, visiting time of the AIDS team and Hospice volunteers were coordinated, and we conducted life review method to harmonize the relationship between the patient and her daughter. The patient was able to leave without apprehension and regrets and family members were able to express respect and pay regards.

並列關鍵字

cachexia ； HIV/AIDS ； hospice care ； life review ； terminal cancer

參考文獻

吳尚倫、謝政智(2017)．癌症相關疼痛之藥物治療新觀念．臺灣臨床藥學雜誌，25 (2)，100-108。https://doi.org/10.6168/FJCP.2017.2502.02

汪慧玲、陳怡安、張馨元(2018)．以安寧療護理念協助一位膽管癌末期病人善終之護理經驗．安寧療護雜誌，23 (1)，85-98。https://doi.org/10.6537/TJHPC.201803_23(1).07

張孔齡、張詩吟(2018)．一位末期子宮頸癌病人及家屬面對死亡哀傷歷程之照護經驗．安寧療護雜誌，23(1)，58-69。https://doi.org/10.6537/TJHPC.201803_23(1).05

楊雅涵、呂簪婷、殷瑜君、杜慧茹、蔡宜蓁(2018)．照護一位肝癌末期合併腦轉移個案之護理經驗．腫瘤護理雜誌，18 (2)，59-71。https://doi.org/10.6880/TJON.201812_18(2).06

陳孟琪、巫怡翎、蔡慧于、曾斐琳、劉子琳(2019)．照護一位B型肝炎及愛滋病毒感染者引發急性肝衰竭瀕死個案之護理經驗．長庚護理雜誌，30(1)，112-123。https://doi.org/10.6386/CGN.201903_30(1).0010

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一位愛滋病女性併癌末惡病質面臨死亡之照護經驗

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